My 15 month old son, Brantley, has a rare neurological syndrome. It is called MECP2 Duplication Syndrome and it has devastated our family and so many others. Our children are trapped inside their bodies, they can understand everything but cannot communicate the way you or I do. There are doctors in Houston, Texas that are working on a cure and have had great success in mice! However, since this syndrome is so rare it is up to us parents to raise the money for the cure which costs millions of dollars. We are trying so hard to raise awareness and make this syndrome known. Any childhood disease or disorder is devastating and sadly some are not curable, that breaks my heart. No child should have to endure what our kids do. You can help us cure MECP2 and be part of something amazing!!
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