+26 votes
Brantley's Brigade
Description
My 15 month old son, Brantley, has a rare neurological syndrome. It is called MECP2 Duplication Syndrome and it has devastated our family and so many others. Our children are trapped inside their bodies, they can understand everything but cannot communicate the way you or I do. There are doctors in Houston, Texas that are working on a cure and have had great success in mice! However, since this syndrome is so rare it is up to us parents to raise the money for the cure which costs millions of dollars. We are trying so hard to raise awareness and make this syndrome known. Any childhood disease or disorder is devastating and sadly some are not curable, that breaks my heart. No child should have to endure what our kids do. You can help us cure MECP2 and be part of something amazing!!
253 views Sep 11, 2015
Taryn10 430 points
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anonymous
Is there any social profile to follow?
+1 vote
Sep 11, 2015
Taryn10 430 points
You can follow his page on Facebook "Praying for Brantley". I also keep a blog on him https://bloggingforbrantley.wordpress.com/ and you can find more on his disorder at www.401project.com!
Brantley! 330 points
He is such a tough little guy!! Love him!
+1 vote
Sep 11, 2015
hencarking 180 points
Sweet, sweet baby!  Wonderful family!
+1 vote
Sep 12, 2015