In February 2015, Rob and Michaela had a beautiful daughter, Lola and enjoyed life full of laughter and play. They were getting ready to welcome their second child in March and could not be more excited about their growing family.
On March 1st 2015, just a few days shy of turning 2, Lola was diagnosed with Chordoma. And Rob and Michaela welcomed their second daughter, Lucy, days after. Treatment for Lola followed after the birth of Lucy. Family life went into overdrive, including trips back and forth to Memorial Sloan Kettering Cancer Center, long admissions to the hospital, and caring for a newborn. Since March, Lola has had a craniotomy, thoracotomy and segmentectomy (a lung resection), and she has completed 10 rounds of chemotherapy. Lola is a beautiful, strong, feisty little 2-year old who loves her Minnie Mouse, Mickey Mouse, Elsa and Anna. She touches everyone she meets with her charm and imagination, and despite her age, she will tell you what is on her mind and how she feels about you. Lola is a fighter and will continue to strive to greatness.
Following her last round of chemo, all her doctors have determined that her next step in order to make sure this tumor is gone once and for all is Proton Beam Radiation. This treatment is done at Massachusetts General Hospital in Boston, Massachusetts. Lola and her family moved to Massachusetts to ensure Lola and her little sister, Lucy, can continue to have as normal of a life as possible. Lola’s treatment started right after the New Year and will consist of radiation every day.
Lola started Proton Beam Radiation on Tuesday, January 26th, 2016. She has done well despite a little cold and feeling a little dizzy after anesthesia. She has been also been receiving physical therapy. It has been a challenge waking up at 6:15 every morning to travel into Boston and not being able to eat or drink from the time she goes to bed until radiation is done, usually around 10 AM the next morning. Overall, Lola and her family has been managing their new environment and new schedule.