here is a little video that my kids and I put together in honor of Angel Ali memory and to bring awareness to batten disease . Ali was diagnosed with batten disease at the age of four. Her ability to walk, talk, see and eat by mouth was all taken from her by this monster battens. She fought a brave battle , but on September 16 2014 Ali gained her heavenly wings. Battens may have taken her from this earth but battens can never take her from our hearts. We all love and miss you sweet Ali. This one is for you.