+26 votes
My Chiari Story-Please share :)
Description
Hey Ellen my name is Briana. I'm sure you have seen a few of these videos. Our hope is to spread awareness about Chiari Malformation. I am 26 and suffer daily from this rare brain disease. We are all hoping that you will be able to help us. Chiari is real, a real pain in the neck and we NEED a cure.
976 views Dec 23, 2014
Mater Potater 400 points

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anonymous
Thank You Briana <3 From All Of Us Who Has Chiari..............
+7 votes
Dec 23, 2014
Autumn Hancock Berte 290 points
Thanks for bringing awareness!! My 17 yr. old has Chiari
+6 votes
Dec 23, 2014
Mater Potater 400 points
no problem :0) i hope she is doing well!! sending prayers :0)
Stephanie Shelton Ra 270 points
Not sure if I voted correctly but all of us that have Chiari with or without having had surgery appreciate what you are doing. More people everyday are becoming aware & you are helping so much! Thank you!
+6 votes
Dec 23, 2014
Mater Potater 400 points
thank you so much :0)
AimeeDanielle 260 points
Thank you for bringing awareness to this miserable condition
+5 votes
Dec 24, 2014
Christina Dugan
I too had surgery in 2012 and suffer daily...Thank You for bringing awareness...Merry Christmas and A Healthy, Happy New Year!!!
+4 votes
Dec 23, 2014
Kristin 380 points
Thank you for bringing awareness. This disease has taken the life of my mother and almost took mine in 2010. It took years for me to find a doctor who could pronounce it. Definately needs awareness! !
+4 votes
Dec 24, 2014
anonymous
My 17 year old was decompressed when she was 14.  Her world now consists of Botox in her head, neck and shoulders and in between those painful injections, she has steroid injections to help with the pain. She can no longer attend a normal school, she has no friends but she promised me that suicide is not an option.  Yes, we need family members, and medical professionals to be better informed but most importantly, Chiari Malformation needs a CURE!
+2 votes
Dec 29, 2014
Kurt Schauberger
Thank You Briana I to suffer greatly from this and this needs attention so people know what we go through and to help find that cure someday.  Just today I heard of two lives being cut short due to this.  It is fatal and a lot people have it and have no clue that they are inflicted like we are.
0 votes
Jan 19, 2015
Peggy
Thanks Briana.  I am 65 years old and had my decompression surgery in 2001. After many years of symptoms which I had no clue "why" until they became too difficult to endure.  I also have Syringomyelia.  My surgery was a success and I have done well compared to so many, but I still have so many of the same issues, just not as severe. I'm with you....we cannot give up HOPE for a cure for so many who still suffer and those who are still undiagnosed. Thanks for helping us to share the awareness for our disease.  Stay strong and have a happy life!
0 votes
Jan 19, 2015
anonymous
This amazing Young Woman is a fighter just like all of us with Chiari, WE NEED A CURE,Please Ellen help spread the word
0 votes
Jan 21, 2015