+125 votes
Ellen Ticket Noification Find a Cure for Courtney - Courtney’s Cans For A Cure
Description
Please Help Find a Cure for Courtney - Courtney’s Cans For A Cure
Contact / Credits: Courtney’s Cans For A Cure
7,798 views Sep 14
anonymous
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CureforCourtney 1,490 points
Courtney is my daughter who has a rare muscle disease called a RYR-1 myopathy. She is 14 years old and has been raising money through bottles and can redemptions to raise money for a treatment or cure to the RYR-1 Foundation. Courtney has raised approximately $8,000 over the past 2 years. Her goal this year is $8,000 however, her fundraising efforts have been affected by her recent complete spinal fusion on 9/6/18 at  Children's Hospital of Philadelphia (CHOP). She is home recovering. She has 2 wishes other than find a treatment or cure...MEET Ellen and get a Welsch Corgi. This is her meeting her first Corgi. If you have bottle and can redemption in your state please consider sending in your redemption to the RYR-1 Foundation (https://www.ryr1.org/copy-of-donate). All donations go directly to research as it is founded and managed by individuals affected with this muscle disease. All donations are also matched by the Schooner Foundation. Please spread awareness and help us fundraise to find a cure or treatment.
+39 votes
Sep 14
Abbie Wright 120 points
I always see your family working so hard to collect cans for this cause. I never heard of this terrible disease until Courtney and I pray they are able to find a cure.
CureforCourtney 1,490 points
Thank you so much for helping us Abbie! It means so much to us! Please know all money donate goes straight to research and is matched 100% by the Schooner Foundation. Just to have ELLEN educate everyone about this disease would be amazing!! #strengthinnumbers #cureryr1 #findacureforcourtney
Danddnolan 120 points
I met Amy when we worked together as nurses in Labor and Delivery. Amy is an amazing nurse practitioner, wife, mom and friend. She has two wonderful children. Courtney is an incredible young lady with courage, strengrh, and indomitable spirit. I would love to see her dreams come true both experiencing a cure and meeting Ellen!!!!
CureforCourtney 1,490 points
I could never have reached my goals as a nurse practitioner without my co-workers and friends who supported me a long the journey. You have listened to me for hours on end regarding Courtney's muscle disease and I am thankful for your support. #strengthinnumbers #cureryr1 #findacureforcourtney
Manara 110 points
Courtney is the Bravest and most positive teenager / person I know. Being a teenager is hard enough however to battle a lifelong rare disease she is an inspiration optimistic loving and an amazing role model to all who meet her. I am so fortunate to have her be a “older cousin” to my 7 year old daughter tonshow Her what real strength and faith mean. We love you Courtney
hcorbett 330 points
I know Courtney because I worked with her incredible mom Amy! Keep up the good fight Perrin’s ❤️
+20 votes
Sep 14
CureforCourtney 1,490 points
Thank you so much for supporting me at work and for my daughter. It means so much to me! #strengthinnumbers #cureryr1 #findacureforcourtney
Erin Connolly 360 points
Hello, The PERRIN family is so fortunate to have the Baldwinsville Ny & surrounding communities help with tons of cans&bottles. I,Erin owner,Redemption Center if Baldwinsville,  am so pleased to be able to help the family by counting all cans/bottles that are donated. The amount raised so far just from my side is AWESOME!!! Miss Courtney is a very pleasant young lady with a lot of ambitions. Let's keep this bottle drive going and find a Cure for Courtney
+18 votes
Sep 14
CureforCourtney 1,490 points
We are hoping to have too many bottles and cans to count!!! #strengthinnumbers #cureryr1 #findacureforcourtney
Jlandon19 350 points
Courtney is a Student if mine and is a Black Belt in Martial Arts. She is such a hard worker and deserves more help to find a cure for this disease.
+17 votes
Sep 14
CureforCourtney 1,490 points
Sensi Landon we can never repay you for all the support you have given Courtney through the years. Without you she would never have found her strength both physically and mentally. We look forward to a successful bottle & can drive on 9/22/18 at the dojo. We love you so much!
#strengthinnumbers #cureryr1 #findacureforcourtney
Mdalsever 360 points
You are an amazing advocate. RYR-1 foundation is lucky to have all of you in its corner!
+16 votes
Sep 14
CureforCourtney 1,490 points
Mike, no one could have picked a better brother of choice than you! Thank you for always being there for us and having such great cousins for Courtney! #strengthinnumbers #cureryr1 #findacureforcourtney
michellemiliti 330 points
One of the most dedicated families I know!! They’ve done such a great job of raising awareness. And Courtney is one of the bravest people I know!!
+14 votes
Sep 14
CureforCourtney 1,490 points
Thank you Michelle for helping us reach out to Ellen to spread knowledge of our disease and help us raise money through our bottle & can drive. We always appreciate your donates and will always drive to your house. Please consider coming to our bottle & can drive next weekend (9/22/18) at Impact Martial Arts Team Andrello from 11am-4pm. #strengthinnumbers #cureryr1 #findacureforcourtney
amalinka 400 points
Courtney is a sweet, young girl who deserves the world. Her family is the most supportive, hard working family that I have ever met. They will do anything to help their loved ones and I strive to have a family like them one day!
+13 votes
Sep 14
CureforCourtney 1,490 points
Abby, thank you for always supporting us! We love you and know you will have such an amazing family because you are a fierce, loving and determined young woman! We will always love you! Remember for me, when you are a nurse look for zebras! #strengthinnumbers #cureryr1 #findacureforcourtney
CureforCourtney 1,490 points
Watkins Wellness in California donated $2,000 to the RYR-1 Foundation. How many more amazing companies will help us fight for Courtney and those affected by the RYR-1 myopathy! #strengthinnumbers #cureryr1 #findacureforcourtney
+13 votes
Sep 14
bouchaer 350 points
Courtney is the most strong, brave, and resilient person I have the pleasure of knowing! Her entire family is so supportive of not just her and finding a cure for her disease but of everyone they know that’s in need of anything! I don’t know anyone else that is more deserving of support and hope and all the best the world has to offer! I have the great pleasure of knowing this beautiful family because I am one of Courtney’s mom’s former students who has been on the recieving end of her family’s support often! I want to help make Courtney’s dream of meeting Ellen (and curing her disease) a reality!
+13 votes
Sep 14
CureforCourtney 1,490 points
Elise, your friendship to Courtney has pulled her through some pretty tough times during her hospital stay! She looks up to you! Your constant donation of bottles and cans means so much to us! Especially because you could have used that money yourself!!! You make me proud and remember to always lift those up around you! #strengthinnumbers #cureryr1 #findacureforcourtney
Christina.adams2889 500 points
Gooooo Courtney!'n
+13 votes
Sep 14
CureforCourtney 1,490 points
She is working so hard! I am amazed by her strength! Thank you so much for helping us! We appreciate your friendship and support more than you know! #strengthinnumbers #cureryr1 #findacureforcourtney
jms7800 740 points
We are and will continue to pray for a cure! #findacureforcourtney <3
+13 votes
Sep 14
CureforCourtney 1,490 points
I don't know how we would be getting through this without your support! #strengthinnumbers #cureryr1 #findacureforcourtney
Kendall704 800 points
This is such an amazing family!  So dedicated in their mission to find a treatment and cure for this disease.  Courtney has more courage and strength @ 14 yrs old than most adults.  I love you guys!!  So proud of all you are doing and I pray that your wishes come true. #strengthinnumbers #cureryr1 #findacureforcourtney
+12 votes
Sep 14
CureforCourtney 1,490 points
Mel, Distance may be between us physically but not in the heart! Thank you for always being there for me. #strengthinnumbers #cureryr1 #findacureforcourtney
Kendall704 800 points
You are my "person" ❤ always
CureforCourtney 1,490 points
Always... family is what we make it!
Tsecor 440 points
Courtney and my son have done karate together for many years now. We are family through the dojo. Modesty, courtesy, integrity, perseverance, and indomitable spirit. Courtney demonstrated these qualities while earning her Black Belt, as well as every day, especially after her recent surgery. Wishing her a speedy recovery.
+12 votes
Sep 14
CureforCourtney 1,490 points
We would not trade our karate family for anything! #strengthinnumbers
GSecor237 420 points
Go Courtney! Hang in there!
+11 votes
Sep 14
CureforCourtney 1,490 points
Thankful for our karate family! It is important for you ALL  to know that in her lowest points it is her karate family that keeps her going. The first thing she said when she found out she needed a complete spinal fusion with tears in her eyes was, "Mom, I really want my second degree black belt." Thank you for your friendship and support. #strengthinnumbers #cureryr1 #findacureforcourtney
Btouron 340 points
My husband and i have been blessed to have met Courtneys mom through Preventive Medicine in Camilus New York! We are wrapping Courtney and her family in prayers and hugs to find a cure!!
+11 votes
Sep 14
CureforCourtney 1,490 points
Thank you so much for your prayers and thoughts! I believe in the body's ability to heal if you give it what it needs! She is determined just like her Momma! I appreciate your support! #strengthinnumbers #cureryr1 #findacureforcourtney
jms7800 740 points
Courtney is a sweet and beautiful girl. She has been through so much and always has a smile on her face. She has been an amazing role model to my daughter and a great friend. This family has been fighting so hard to find a cure and they deserve this. We pray that they are able to find a cure.
+10 votes
Sep 14
CureforCourtney 1,490 points
Thank you for your prayers, support and friendship! Courtney has been a role model to everyone around her. Her strength comes from within! An indomitable spirit with amazing perseverance! #strengthinnumbers #cureryr1 #findacureforcourtney
Kendall704 800 points
She gets it from you!!
mhghobri 350 points
Courtney is funny, sweet and full of life! I'm proud so proud of her!
+10 votes
Sep 14
CureforCourtney 1,490 points
She most definitely is all of those things! We could not be prouder of her! #strengthinnumbers #cureryr1 #findacureforcourtney
Lturcotte 350 points
Courtney has a very dedicated mother who is a wonderful advocate for her disease. She is inspiring to many people as an example of a fearless person who will sacrifice her time and energy to attempt to raise money in any way she can. Slowly but surely she has built a network of friends willing to help donate to the cause and continues to gather up cans and bottles to contribute to the fundraising efforts. Every day she works tirelessly to help her daughter so that hopefully one day there can be a cure!
+10 votes
Sep 14
CureforCourtney 1,490 points
Lisa, thank you for understanding my dedication and passion to help find a treatment or cure for my daughter and those affected by a RYR-1 myopathy. I am please to report that there is HOPE for a treatment as there are human trials in adults currently! We can only find a treatment or cure with help from such generous individuals such as yourself! A mother's love knows no boundaries! #strengthinnumbers #cureryr1 #findacureforcourtney
Lindzjayne 550 points
The Perrin family are amazing! Courtney is such a strong teenager and has such an awesome attitude. Her parents are beyond supportive and the best advocates for her. She also has a wonderful brother too. This family goes above and beyond in all aspects and deserve to have the opportunity to meet Ellen and have Courtney's dreams come true!
+10 votes
Sep 14
CureforCourtney 1,490 points
We truly appreciate the love and support for Courtney! I would move mountains for her! #strengthinnumbers #cureryr1 #findacureforcourtney
bswaclaw 330 points
Courtney is a friend of my daughter.  They are great friends.   She is a very kind and generous friend.  She is a brave and strong person.  She deserves to have her wishes come true.
+9 votes
Sep 14
CureforCourtney 1,490 points
Courtney is so thankful for her friends. It is what keeps her going! It can be difficult for her at times as when her disease was more obvious many "childhood" friends abandoned her. I tried to explain that this is normal passage in life. To her this is not acceptable! She would never hurt anyone! #strengthinnumbers #cureryr1 #findacureforcourtney
jms7800 740 points
Alaina looks up and Courtney and considers her a best friend!
CureforCourtney 1,490 points
Courtney is so protective of her! >3
CureforCourtney 1,490 points
Alaina, Courtney cherishes you! Thank you for always being so positive and happy with Courtney! You are a beautiful young lady inside and out! We love you, The Perrin Family
#strengthinnumbers #cureryr1 #findacureforcourtney
941 320 points
I worked with Amy, Courtney's mom when Courtney was in elementary school.  Both Amy & Courtney have been spreading awareness as long as I have known her. This family is an incredible example of what can be accomplished when patients & their families research and advocate unrelentingly for a cure.  Keep up the good fight!

Courtney, Keep your chin up.
#strengthinnumbers #cureryr1 #findacureforcourtney
+9 votes
Sep 14
CureforCourtney 1,490 points
Thank you for your friendship and support! Thank you for LISTENING to me! I know I can be unrelenting in my passion to spread awareness and fundraiser! #strengthinnumbers #cureryr1 #findacureforcourtney
Allisonreed 350 points
Courtney is such a brave and strong young lady with an incredibly supportive family! Ellen would be so lucky to meet her
+9 votes
Sep 14
CureforCourtney 1,490 points
Allison, thank you for supporting Courtney fight this disease! Most importantly, I thank you for your friendship! You understand as a mother you would do ANYTHING for your child! #strengthinnumbers #cureryr1 #findacureforcourtney
mabiem 320 points
I was a nursing student of Courtney's Mom, Amy. Amy is one of the most intelligent, kind, motivating and inspirational women I know. As evidenced by her drive and commitment to you family and especially to finding a cure and helping Courtney to gain her own inspirational agenda! I cannot imagine anyone more deserving to meet Ellen than Courtney, Ellen, you won't be disappointed in this incredible young woman!! Anyone to meets this family is blessed and inspired!! Prayers for a cure!
+9 votes
Sep 14
CureforCourtney 1,490 points
Besides my passion for my daughter is a love to educate my nursing students and patients. It broke my heart to have to take a break from teaching to fight this disease! I love that my students have knowledge of this disease and can educate others! It was an honor to be with you on your journey into nursing! #strengthinnumbers #cureryr1 #findacureforcourtney
Gary1561732 330 points
Courtney is one of the bravest people I know! No matter what her obstacles she faces them head on and determined and a wonderful attitude. She is an inspiration for all that come incontact with her. She is alway willing to share her story to help educate others “she supper smart”. She has an awsome support system at home with two dedicated parents and a younger brother. She’s pretty awesome.
+9 votes
Sep 14
CureforCourtney 1,490 points
She has amazing friends and family! Thank you for being there with us! #strengthinnumbers #cureryr1 #findacureforcourtney
NLRN 330 points
Keep Managing that Mischief, girl.
+9 votes
Sep 14
CureforCourtney 1,490 points
You know she will! My Harry Potter girl! Thank God for the movies and books! Hours of “distraction” from her pain! #strengthinnumbers #cureryr1 #findacureforcourtney
KWolcik 320 points
Courtney is a sweet young lady who deserves the world. I met Courtney and her beautiful family thru her Aunt Marion. I'm so blessed to be friends with such a strong dedicated family. Courtney is a strong brave young lady, a fighter, and continues to fly high. She is an inspiration to many of us. Seeing her smiles thru the rough times is a sign of her staying strong. Love this family!!!
+9 votes
Sep 14
mmlee 1,010 points
Thank Kim!!!!!  Love you so!
AlexC 330 points
Courtney deserves this because she has been a great friend and has been fighting RY-R1 and is still strong.
+9 votes
Sep 14
CureforCourtney 1,490 points
Courtney is so lucky to have you as a friend! She LOVES all the fun activities the four of you do together! Thank you for being friends with Courtney and her brother! You are an amazing young man! #strengthinnumbers #cureryr1 #findacureforcourtney
Momof3boysmrc 400 points
Where do I begin about Courtney?  I have know Courtney since she was 3. Courtney was and still is a spunky girl with a zest for life. She is a fighter and will kick RYR-1 myopathy to the curb. Love you Court (and family ❤❤❤)
+9 votes
Sep 14
Nyantiok.manas 550 points
As a former student of her mother, I have seen what a wonderful determinant woman she is. That being said, I chose to help them whichever way I can, because nobody choose to be born with certain condition. To our darling Courtney, I admire your strength and the willingness to go through all these stressful moments. I wish the cure would come sooner,  so that no other children should have to go through what you been through.
+8 votes
Sep 14
Peant 320 points
The Perrin's are an amazing family , who are so active in try to collect cans for this rare disease that their daughter Courtney has. This young lady is amazing to be so young and doing everything she can to stay positive and be a normal kid #CureforCourtney
+8 votes
Sep 14
CureforCourtney 1,490 points
She works so hard and never quits! She stays focused and positive! Love my girl! #strengthinnumbers #cureryr1 #findacureforcourtney
Spoled74 310 points
Amazing things from this amazing family.  Let's help to find a cure for RYR-1 all along raising awareness.  Strongest little lady I have met!  #strengthinnumbers #cureryr1
 #findacureforcourtney
+8 votes
Sep 14
AlainaC 340 points
Courtney has been my best friend for several years and she will always be. She always helped me see the bright side of things. She deserves this so much. My goal is to find a cure for her, and I will never stop trying. She is my best friend.
+8 votes
Sep 14
jms7800 740 points
That is really sweet, Alaina!
CureforCourtney 1,490 points
She can only fight this with her loved ones! Please know that she is a positive person and will always be there for you! #strengthinnumbers #cureryr1 #findacureforcourtney
twaldron 310 points
I have known Courtney since the day she was born. I have watched her personality and beauty blossom over the years, but what I have loved the absolute most is her wicked sense of humor. She has a wit about her that is just plain hysterical. I want her to share her swapping of the children photos with #ellen (did I even do that right? I don't know how to hashtag!). You will beat this muscle disease Court, it has no power to bring your attitude down. :0)
+7 votes
Sep 14
CureforCourtney 1,490 points
She used that sense of humor while in the hospital for her recent spinal fusion. She will probably kill me for saying this but she significant gas after we stimulated her bowels from her constipation. She locked me in the bathroom with her! She would also make this funny face prior to letting it rip! It was moments like those which made me smile b/c I knew my girl was going to get through this! #strengthinnumbers #cureryr1 #findacureforcourtney
Lcrn628 300 points
I worked with Courney's mom, and this amazing family is so strong and will stop at nothing for Courtney!❤
+7 votes
Sep 14
CureforCourtney 1,490 points
I love my co-workers! You guys have helped me through some very hard times which I tried to keep to myself. There is nothing more strong than a nursing coworker bond! Love my nursing friends! #strengthinnumbers #cureryr1 #findacureforcourtney
Amalsever18 290 points
Courtney is one of the strongest and bravest people I know.  Her family is amazing at raising awareness for her disease and supporting her with more love than anyone I know.  They never stop !! Strength in numbers
+7 votes
Sep 14
CureforCourtney 1,490 points
We cherish your family and know we could not do it without your support! Love you guys! #strengthinnumbers #cureryr1 #findacureforcourtney
Diane izyk 460 points
Courney you are one coragous young lady. I know nothing about ryr-1, but i know you ate one tough cookie!!
+7 votes
Sep 14
CureforCourtney 1,490 points
Diane, I want you to know about her RYR-1 myopathy especially because of you working with anesthesia! Courtney's specific muscle disease (RYR-1) makes patients susceptible to malignant hyperthermia which is a deadly reaction to volatile anesthetic agents or succinylcholine. Individual's with her muscle disease do not always present in an obvious fashion so it's important for you to know they will have a rapid increase in body temperature and if not immediately treated with dantrolene it is lethal. Patient's can also have "awake" malignant hyperthermia in which they have the same reaction but instead to anesthesia it happens with exercise or heat intolerance. These individuals are usually diagnoses with there muscle disease after their autopsy. In kids during this episode it can have the appearance to emergency responders as a seizure. Thank you for supporting us on our journey. Please don't forget our bottle and can drive on September 22, 2018 at Impact Martial Arts--Team Andrello in Baldwinsville! 11am-4pm #strengthinnumbers #cureryr1 #findacureforcourtney
Diane izyk 460 points
You are one tough cookie
+7 votes
Sep 14
Jashleigh1125 290 points
I’ve been following cureforcourtney since I met her mother! She is an incredible little girl and I pray some day she can be cured from this awful disease
+7 votes
Sep 15
CureforCourtney 1,490 points
I hope I am an inspiration to all! My favorite quote is by one of my favorite nurse, Margaret Mead, "Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed, it is the only thing that ever has." I believe as a community we can change the world for Courtney and those affected with RYR-1. It is an "orphan" disease and needs awareness and research! #strengthinnumbers #cureryr1 #findacureforcourtney
cmt43 290 points
Courtney- You are loved and admired more than you could ever truly know. Your strength, perseverance, and passion are such an inspiration! Even on your worst days, you continue to raise awareness to help others.  So young... yet very wise for your years. Thank you for teaching us to never give up or give in!!!  Always keep your drive and most importantly, that beautiful smile!! Praying for a cure sweet girl!!

Amy- you could have given up! You could have let them talk you into believing all of the misdiagnoses and excuses! You could have let them silence you! BUT A MOTHER KNOWS!! Your daughter and those with RYR-1 are blessed to have you as an advocate.  One could say you found your purpose as the wonderful NP you are....sharing your knowledge and expertise. You are a strong and fierce woman. Keep fighting the fight- you are making such a difference in the lives of so many.  Hugs to you and your family - sending prayers and love. Ellen is going to LOVE you guys!!!
+7 votes
Sep 15
CureforCourtney 1,490 points
Rarely do I cry but your post made me cry. I could never give up for Courtney or those affected. It is my purpose and drive. I will beg and plead for every bottle or can in all of the United States, I will have fundraisers and spend endless hours trying to spread awareness! Thank you for supporting us! #strengthinnumbers #cureryr1 #findacureforcourtney
cmt43 290 points
You are amazing!! Always the educator! I miss your face at the CON
(Chris)
CureforCourtney 1,490 points
Thank you Chris! I miss the college terribly! It means a lot to me to have your support as I look up to you!
Luckyhair 300 points
Courtney is an amazing young woman. I know she has a very rare muscle disease she has been battling with for years. Even with her disability her perseverance, hard work and determination working through many color belts she has achieved the tough rank of Black Belt 1st degree in karate at Impact Martial Arts Team Andrello, Baldwinsville NY. She is quite a young lady!
+7 votes
Sep 15
CureforCourtney 1,490 points
Without your support she never would have obtained those goals! We cherish you so much! Thank you for loving my babies! #stengthinnumbers #cureryr1 #findacureforcourtney
+7 votes
Sep 15
CureforCourtney 1,490 points
We are thankful for our RYR-1 family and Dr. Goldberg for bringing us all together! We are better together and have a fighting chance to find a cure or treatment! YOU inspire me! #strengthinnumbers #cureryr1 #findacureforcourtney
Epedersen 460 points
Best of luck!!!! Hope this reaches Ellen!!!!   #cureryr1 #strenghtinnumbers #bettertogether
+7 votes
Sep 15
Paw98 1,090 points
Courtney is an inspiration to us all.  She has faced so many struggles along the way and always comes out with a smile on her face.   Courtney has always remained positive in school and has assisted with the anti-bullying programs at school.  She has been a positive influence with the RYR1 Foundation along with the Muscular Dystrophy Association.  She has become an ambassador for the MDA to help raise money for their summer camp.  She has recently returned from the Children’s Hospital of Philadelphia after a complete spinal fusion and still remains positive.  
Courtney would love to share her story to Ellen and inspire others who struggle with muscle diseases.
+6 votes
Sep 14
CureforCourtney 1,490 points
I know Courtney could never do it without her amazing father! #strengthinnumbers #cureryr1 #findacureforcourtney
Mbrown71 280 points
Good luck Courtney and Amy. Keep fighting!!!
+6 votes
Sep 14
CureforCourtney 1,490 points
Thank you for supporting Courtney and I! It means so much! A mother’s love knows no limits! #strengthinnumbers #cureryr1 #findacureforcourtney
heatherhay 270 points
Courtney is an amazing young lady and I hope all of her dreams come true!
+6 votes
Sep 15
CureforCourtney 1,490 points
Thank you so much for helping us on our journey! It means so much to me that after all these years you care! #strengthinnumbers #cureryr1 #findacureforcourtney
Cfitzgibbons 280 points
I admire the strength and determination to find a cure for Courtney! Hope this helps.
+6 votes
Sep 15
CureforCourtney 1,490 points
Thank you! As a mother my determination is out of absolute love! #strengthinnumbers #cureryr1 #findacureforcourtney
rkimberly 390 points
Courtney is our cousin and she and her mama are the most amazing and tenacious people I've every known!  Her mom has worked so hard to raise money in an effort to fund research so that a treatment or cure may be found for this rare condition.  Through all of the trials that have come along with this disease Courtney has kept her face to the sunshine going to school, interacting with others, making friends (and fans!) participating in karate and so much more!  She is a strong young lady that carries a weight better than most adults.  We love her and her family so very much and will continue to support them in their fight against RYR-1 !
+6 votes
Sep 15
CureforCourtney 1,490 points
We just love you guys! Although time is not on our side to get together! I could not be happier that out of all the men in the world you found Tommy! Such an amazing story in itself! Strong women know strong women! Love ya, Amy #strengthinnumbers #cureryr1 #findacureforcourtney
mmlee 1,010 points
Courtney is a pillar of perseverance and strength.  What most people don't know is when she was born  it was discovered that something was wrong and doctors could not give her parents a diagnosis.  One doctor told them take her home and enjoy her while you can.  It was at that point her mother who was a office manager at a dental office, but herself in nursing school, while still working and taking care of Courtney.  Her parents worked hard and diligently together to take care of her and for Amy to attend nursing school.  After getting her RN she continued on and became a Nurse Practitioner.  Her whole driving force being that she was going to make sure that Courtney would get the care she needed and her mother would have the education needed to be the best advocate for her.  Due to all the work her parents have put in Courtney has thrived and continues to amaze us with all the struggles that have been placed before her.  This family works tirelessly to raise money and raise awareness for RYR-1.  I can not stress enough all the dedication and hard work they put in.  Meeting Ellen would be an amazing life experience, but finding a cure would be a life altering experience for not only Courtney but for many others who have been afflicted with this disease.  Our biggest prayer is that a cure is found.  Please help in this effort
+5 votes
Sep 15
CureforCourtney 1,490 points
I know without a doubt I could never have this drive without your support. I have given up endless hours of family and "fun" time to educate myself for advocacy. I would NEVER change that but I am sad to have missed so many special occasions. Thank you for loving my Doodlebug as much as I do! #strenghtinnumbers #cureryr1 #findacureforcourtney
Jbfield 250 points
I have known Amy since waaaay back in high school and her amazing daughter Courtney is such a strong lady.  We hope that Ellen will help raise awareness on her struggles and this disease.
+5 votes
Sep 15
CureforCourtney 1,490 points
Way back seems just like yesterday. We are thankful for your friendship and although there are miles between us I still think of you often and value your friendship. I love watching your kids grow up! You are a great person and I am so happy you have an amazing family! You are an excellent husband and father! What we wouldn't do for our children! My kids are my everything. I hope that Courtney heals well and we have the opportunity to go to Florida soon! She still loves DISNEY but Harry Potter has taken over her world! Thank you for your support! #strengthinnumbers #cureryr1 #findacureforcourtney
Christina.adams2889 500 points
Cmon yalll!!!! Vote vote vote. Courtney you are beautiful and inspiring!!! And you haveonesuper cool mama! Keep it up!!
+5 votes
6 days ago
CureforCourtney 1,490 points
I just love you! VOTE VOTE VOTE!!!
CureforCourtney 1,490 points
I just love you! VOTE VOTE VOTE!!!
mmacraesyracuse 830 points
Sending PRAYERS your way to get healthy and meet Ellen Courtney !
+4 votes
Sep 15
mmacraesyracuse 830 points
Sending Prayers your way Courtney both to get healthy and Meet Ellen ! I have the pleasure of knowing your mom from Preventative Medicine Assoc.. I know how hard she works, she's the first Doctor who has ever called or e-mailed me at all hours to make sure I am informed or to see how I'm doing. I don't know how she does it all, but I'm thankful for her, keep fighting kiddo and best of luck to you !
+4 votes
Sep 15
CureforCourtney 1,490 points
Thank you for taking the time out of your day to help me and Courtney! It means the world to me! You would love her! She is a strong little sole! #strengthinnumbers #cureryr1 #findacureforcourtney
House11 250 points
Courtney you are truly an inspiration to all of us. I only know of your story thru your mom as she was my nursing instructor. You deserve a visit to Ellen!!!
+4 votes
Sep 15
CureforCourtney 1,490 points
Thank you from the bottom of my heart for helping us in our journey! #strengthinnumbers #cureryr1 #findacureforcourtney
Kellygirl61 220 points
Courtney is a very determined young lady.  Nothing stops her from giving it her all.   She, along with her family, are trying so hard to raise money to help in the research for finding a cure for this terrible disease.  Hopefully Courtney will get to meet Ellen and, in doing so, get the word out about this very rare disease and gain funds to help in the research.
+4 votes
Sep 15
CureforCourtney 1,490 points
Can you imagine the population we could reach appearing on the Ellen show. It would be a dream come true! The opportunity to reach out for support on such a large scale would mean so much to my family AND the RYR-1 community! #strengthinnumbers #cureryr1 #findacureforcourtney
CureforCourtney 1,490 points
We keep reaching for our goal and supporting the RYR-1 Foundation. It is important for us and those affected to stand by the organization which is 100% committed to find a treatment or cure. Thank you for helping us in this goal. #strengthinnumbers #cureryr1 #findacureforcourtney
Tiokchol 670 points
Courtney fighting has been an inspirational to many in the face of this rare disease. I hope the cure comes soon, so that her and other children like her be free from the pain they go through everyday. Praying for you Courtney.
+4 votes
Sep 15
CureforCourtney 1,490 points
Thank you for your prayers and support! The best way to find a cure is through raising awareness but most importantly MONEY
JuliaM 200 points
I know Courtney’s mom as she taught me in nursing school. She introduced us to Courtney’s journey while I was a student. As a nurse I have had the pleasure of being with Courtney as her nurse during one of her MRIs. She is brave and determined to not only help herself but others with the same diagnosis. I am honored to know this family and follow their journey in finding a cure! Much love!
+3 votes
Sep 15
CureforCourtney 1,490 points
Julia it meant a lot to me that you provided such excellent care to Courtney! You are a caring, skilled and knowledgeable nurse who can take care of my children any day! Thank you for supporting us on our journey! #strengthinnumbers #cureryr1 #findacureforcourtney
JRBertollini 210 points
Courtney's mom was my neighbor when I was growing up.  I've been following her story and she is such a strong, brave young lady.  She is in my prayers.
+3 votes
Sep 15
CureforCourtney 1,490 points
Thank for your support and prayers! Please reach out to all who will listen! Our strength comes from our numbers AND our growing community! #strengthinnumbers #cureryr1 #findacureforcourtney
Stacey68 210 points
Courtney is a beautiful teenager inside and out who has lived with a muscle disease all her life. Her disabilities have made her unable to be like other children her age, as we all know this sometimes comes with decreased self worth. Courtney has two amazing parents who have stood with het and fought for her to get the best medical care possible. This often comes with frustration as many doctors don't know or understand Courtneys disease. Courtney has taken this upon herself to raise money not just by asking for money but by getting out in the public educating people on her disease and collecting as many bottles and cans as possible with all proceeds to go to the RYR foundation for research so that other children and their parents will not have to face the frustrating road that they themselves have had to travel. Imagine a teenager taking this all on while at the same time dealing with the disease and the treatments and surgeries that go along with it. Today there is no cure, only treatments to aid in making a better life. Courtneys parents want to share their knowledge they have diligently sought for to ensure a better life for thier daughter and to save other families from the frustrations and road blocks they faced along the way. Courtney continues her bottle drives to donate the money to the RYR Foundation to search for a cure, imagine how many bottles she collects to donate 8000 or more dollars! I am amazed and inspired by Courtney and her family as will anybody who hears their story. Please donate your bottles and cans so Courtney can reach her goal and help others affected by this horrible muscle disease.
+3 votes
Sep 15
CureforCourtney 1,490 points
It means so much that you see Courtney’s struggle and perseverance! Your friendship means so much! Love ya! #strengthinnumbers #cureryr1 #findacureforcourtney
Kvox109 210 points
Courtney is so lucky to have an awesome mom like you in her corner!
Keep up the good fight, Courtney!
I hope all your dreams come true!! :)
+3 votes
Sep 15
CureforCourtney 1,490 points
We appreciate all your support and prayers! Hopefully we can make a difference together! #strengthinnumbers #cureryr1 #findacureforcourtney
Minton13 210 points
Hi Ellen I am writing on behalf of Courtney Perrin and the RYR-1 community. The Perrin family are raising money to find a cure for their beautiful daughter Countrys neuromuscular disease. I myself and my beautiful daughter Debrianna have the same muscle disease caused by RYR1. We desperately want to find a cure for this disease. Our Children go through so much in life, we desperately want to find a treatment, especially a cure. Please I ask you Ellen on behalf of the Perrin family and other families like myself and daughter Debrianna, we would love to spread awareness on our muscle disease. Please pick Courtney to be on your show to help raise money to find a cure. We want a cure or treatment for our daughters, myself and the many families affected by this disease. #CureCentralCoreDisease #Strength InNumbers #RYR1Foundation
+3 votes
Sep 15
CureforCourtney 1,490 points
I would do ANYTHING to help find a cure or treatment for you guys. I am so appreciative of Dr. Goldberg forming the RYR-1 Foundation so we have a community! #strengthinnumbers #cureryr1 #findacureforcourtney
Awsquare 200 points
Courtney is an amazing young lady with two amazing parents along with an amazing brother. This is a family that is doing everything they can to find a cure. They do bolltle and can drives spare change collection. They true are an inspiration for what it means to be a family.
+3 votes
Sep 15
CureforCourtney 1,490 points
You are 100% correct! We are a strong and committed family! We feel our friends and family are the foundation to our strength! #strengthinnumbers #cureryr1 #findacureforcourtney
mema17 210 points
My granddaughter Courtney is brave sweet and determined. Even with her medical problems she manages to live a normal life. She has accomplished so much in her life time. She plays guitar and worked very hard to achieve her black belt in martial arts.  She has also found time to collect cans and bottles to raise money for the RYR1 foundation.
+3 votes
Sep 15
CureforCourtney 1,490 points
Courtney is so fortunate to have you in her life! Thank you for always supporting her, Caleb, Kevin and I. #strengthinnumbers #cureryr1 #findacureforcourtney
Pgersh51 210 points
Courtney is an amazing young women. Funny, strong, resilient. Just had back surgery last week and she's such a trooper. Would love for her to meet Ellen ( on her young bucket list). A dream come true. Our whole community is behind her. One special girl, we love you Courtney!!!
+3 votes
Sep 15
CureforCourtney 1,490 points
Thank you for supporting my daughter through this journey. I admire you as a mother who raised 2 amazing strong women! #strengthinnumbers #cureryr1 #findacureforcourtney
Tspin 220 points
Courtney you have the best mom! She is the strongest advocate I have had the pleasure of knowing. Keep up the good work Courtney! I am praying for a cure for you!
+3 votes
Sep 15
CureforCourtney 1,490 points
Thank you for always supporting us on our bottle and cans drive! Your friendship and support means everything to us! #strengthinnumbers #cureryr1 #findacureforcourtney
Tulip0818 210 points
Amy is an incredible advocate.  She was my instructor in nursing school and always pushed us to be the best we could.  I see how hard she fights for her daughter and to help raise money for RYR-1.  If ever there was a deserving person to get behind it is Amy, Courtney, and her family.
+3 votes
Sep 16
CureforCourtney 1,490 points
I try hard to demonstrate the importance of advocacy! When it’s someone you love you will not stop! I am thankful for your support and I hope I have been a strong and uplifting role model. #strengthinnumbers #cureryr1 #findacureforcourtney
Srizza 220 points
I remember when you'd tell us stories about courtney, her spirt shines right through you. Despite the lifetime of challenges you have faced as a family you have created something amazing. Remember when she started to walk, getting her to grow, remember when you finally got a diagnosis, remember how she encourages you to let her be a normal kid when all you want to do is cover her in bubblewrap. She is an extraordinary  kid and I'm so inspired just by knowing you! #findacureforcourtney
+3 votes
Sep 16
CureforCourtney 1,490 points
I cannot thank you for all your support and patience with me all these years! You are a woman and nurse I admire! #strengthinnumbers #findacureforcourtney #cureryr1
Ssparks12 210 points
you And your family are so amazing!  Your comittment to finding a cure, hard work and sticking together as a family are a wonderful example to others!  Keep pressing forward to find a cure, and know that you have friends pulling for you all!!
+3 votes
Sep 16
CureforCourtney 1,490 points
Thank you for supporting us in our efforts to find a treatment or cure! We know we cannot be successful without everyone’s support! #strengthinnumbers #cureryr1 #findacureforcourtney
Mannal 210 points
We do not know you Courtney but we have several mutual friends.  We have lots of cans to drop off for you next weekend to help support your goal! Thank you for educating us!
+3 votes
Sep 16
CureforCourtney 1,490 points
It’s EXCELLENT that you do not know Courtney as it provides us the opportunity to educate a new person about Courtney’s muscle disease! This excites us! We encourage you to visit the RYR-1 Foundation website AND consider ordering food from Sal’s pizzeria this coming September 18th as they are donating 10% of their profits to the RYR-1 Foundation. Courtney is going to try and make an appearance depending on how she is feeling. She had a complete spinal fusion on 9/6/18. Then on September 22, 2018 we are having a bottle and can drive at Impact Martial Arts: Team Andrello in Baldwinsville next to Stewart’s off of Smokeyhollow Rd and Rte. 48 from 9am until 4 pm. We are also accepting loose change or obvious cash donations! #strengthinnumbers #cureryr1 #findacureforcourtney
jctpc34 200 points
I hope we can get this amazing, strong, and brave young lady the 3 things she wants most in this world!  Hopefully this comment will get her closer to being on Ellen, and I will bring all my cans and bottles on Saturday 9/22.  Her mom tells me they are getting close to clinical trials and what they need now is money.  I can't help get her a dog, but I'm sure her mom and dad are working on that.
+3 votes
Sep 16
CureforCourtney 1,490 points
We are working on her dream Corgi, we tell Courtney timing is everything! We need her to heal! Raising money for a treatment or cure is my main focus! (Other than helping her heal) We appreciate all your support and friendship in our endeavors for Courtney and those affected! #strengthinnumbers # cureryr1 #findacureforcourtney
Kimberly Cretaro 200 points
You are an inspiration, Courtney! What a difference you and your family are making in this world by fighting for a cure and educating so many people. I am so proud of you all!
+3 votes
Sep 16
CureforCourtney 1,490 points
Kim, thank you so much for taking the time to vote and donating bottles and cans!
Eternity1965 220 points
Courtney, you are a  brave and beautiful girl. Are there any clinical trials for ryr-1 myopathy?
+3 votes
Sep 16
CureforCourtney 1,490 points
Yes! Through the National Institute of Health Rare Disease Clinic! It is being ran by Dr. Katie Meilluer who is a nurse practitioner! https://www.ninr.nih.gov/researchandfunding/dir/katy-meilleur
#strengthinnumbers #cureryr1 #findacureforcourtney
sam30321 210 points
Courtney is one of the most amazing people I have ever known!! <3
+3 votes
Sep 16
CureforCourtney 1,490 points
Thank you for supporting Courtney on this journey! #strengthinnumbers #cureryr1 #findacureforcourtney
JennDee 210 points
Courtney! You so beautiful, brave, resilient, and smart! I am so proud of you! You live every day to the fullest and you think of others even in the midst of your own suffering. I am honored to know you and your family.
+3 votes
Sep 17
CureforCourtney 1,490 points
Thank you for always supporting us in our journey to find a treatment or cure! Courtney values your friendship! #strengthinnumbers #cureryr1 #findacureforcourtney
DMS 210 points
Courtney, You are a brave and strong girl! You are so blessed to have a wonderful family and community that’s fighting for you. Hoping all your wishes come true! Best of luck to you and best wishes for a speedy recovery from your recent surgery.
+3 votes
Sep 17
jms7800 740 points
Thanks for your vote, Dena! She is so brave and strong.
CureforCourtney 1,490 points
Thank you for all of your support! We could never do it without our community! #strengthinnumbers #cureryr1 #findacureforcourtney
kroden35 220 points
I've been following Courtney and her family for quite some time.  This young lady is such an inspiration.  She is strong, positive and brave....the list goes on.  Her mom works so very hard to advocate for her daughter and do whatever she can to help find a cure for this disease.  It goes beyond Courtney.... what this family does to make a difference to ANYONE suffering with this disease is selfless and amazing.  Courtney, I pray a cure is found for this disease and you are rid of it forever. In the meantime, however, I hope that you are able to realize your wishes to meet Ellen and get a Corgi!   Great wishes my dear!  (I have bottles and cans for you in my driveway as I type :))
+3 votes
Sep 17
CureforCourtney 1,490 points
We appreciate your support! Exciting news for Courtney she should be surprised this weekend with a Corgi! We want her to be rewarded for all her hard work for her fundraising and recovery! Thank you for supporting us! Keep those bottles and cans coming our way! #strengthinnumbers #cureryr1 #findacureforcourtney
kroden35 220 points
What great news!  So very excited for her!
CureforCourtney 1,490 points
She is so excited! We will post pictures. She wants to name her new Corgi "Ellen", imagine that! LOL! #stretngthinnumbers #cureryr1 #findacureforcourtney
Rileyman123 210 points
Courtney is an amazing and strong young lady, she is such a inspiration to everyone who meets her, Ellen you would love her. Her family is so supportive for her and work very hard to raise money for research. This family has so much heart and sole
+3 votes
Sep 17
CureforCourtney 1,490 points
As parents we know we are doing what any other family would do! Courtney amazes us each and every day! When she gets her corgi she is going to name it Ellen! She’s excited for that day! Don’t forget our bottles and cans drive this Saturday September 22,2018 from 9am until 4pm at Impact Martial Arts Team Andrello off of Smokey Hollow Rd in Baldwinsville next to Stewart’s! #strengthinnumbers #cureryr1 #findacureforcourtney
nyerin 210 points
Amy has worked tirelessly to find a cure for this rare disease. She is an inspiration to us all! Just as Courtney is! Always smiling, working to stay physically and emotionally strong. Let's find a CURE!!
+3 votes
Sep 17
CureforCourtney 1,490 points
Thank you for supporting Courtney as we search for a cure or treatment! I know that you know what it is like to advocate for your child! Strong woman, may we be them, may we know them, may we raise them! #strengthinnumbers #cureryr1 #findacureforcourtney
Janettj8297 210 points
God Bless you Courtney for all your efforts to help others. Sometimes it may seem hard but believe me, your work doesn't go unnoticed. God sees!!!! Keep plugging and continue your own fight to get better. Praying for you always and just know all your dreams will come true. God Bless you and your family!
+3 votes
Sep 17
CureforCourtney 1,490 points
Thank you Janet for your continued support with Courtney! It means so much to me! Keep those prayers coming our way! #strengthinnumbers #cureryr1 #findacureforcourtney
Cmchunko 220 points
Amy, your courage and strength are amazing..Courtney, you are just like your mom.  You two (and your family) are fighting this together.  That togetherness gives you more strength.   Courtney I’m so proud of you, seeing you walk after that surgery brought tears to my eyes.  Do you know when you’ll be able to go back to school?  I bet they all miss you.  I wish you the best of luck and ALL you do.  I will be keeping you in my thoughts and prayers
+3 votes
Sep 17
CureforCourtney 1,490 points
I miss you! Thank you for your support now and always! It was amazing to see her walk after surgery what most people don't know is right before that amazing walk she vomited like crazy, wiped her mouth, apologized to her dad (he can't handle bodily fluids), smiled and marched down the hallway. I am truly in awe of her perseverance! Any time you want to come visit we are home! #strengthinnumbers # cureryr1 #findacureforcourtney
MEgan4court 840 points
Courtney is my hero!  She is most deserving of help and Courtney's TEAM will continue to fight!  We love you and are with you Courtney!!
+3 votes
Sep 18
CureforCourtney 1,490 points
Thank you Megan! We miss seeing you and appreciate all your support! When we heal we are coming your way for a visit! #strengthinnumbers #cureryr1 #findacureforcourtney
Rachaellee44 220 points
Love you Courtney ❤️❤️❤️
+3 votes
Sep 18
CureforCourtney 1,490 points
Rachie we miss you so much! It's times like these (teenage years) I wish you lived closer as know she would love to have you around. Mommy is not the best with the teenage girl stuff! She misses you terribly and during her hospital stay she cried a lot that you and Jennifer Diane have had to endure so many hospitalizations with your rare disease of Behcets. #strengthinnumbers #cureryr1 #findacureforcourtney CURE RYR-1 AND BEHCETS BRING ORPHAN DISEASE INTO LIGHT
kjs15 240 points
Courtney- your mom is an amazing advocate! Everyone needs a family member as dedicated/ caring as your mom! Keep striving for your goals- every bit helps toward finding a cure! Hopefully you’ll have your own “Ellen” soon!
+3 votes
Sep 18
CureforCourtney 1,490 points
She is getting a Corgi and is going to name it "ELLEN", she can hardly wait! I think we are a little crazy getting a THIRD DOG but she has worked so hard we want her to have her dreams come true! Thank you for supporting us on our battle to find a treatment or cure! #strengthinnumbers #cureryr1 #findacureforcourtney
Brian80 210 points
I'm Stacey Clos Fiance. She keeps me updated on Courtneys progress. I am blown away by the courage and dedication of your daughter. Keep going Courtney you are such an inspiration!
+3 votes
6 days ago
CureforCourtney 1,490 points
Thank you for all your support, especially with all the bottles and cans!! Enjoy your camping trip and drink away! #strengthinnumbers #cureryr1 #findacureforcourtney
RosieOlivia 220 points
She will always have a special place in my heart. I am so incredibly proud of her. I find myself in awe of her strength and perseverance. Much love to everyone. I hope the upvotes and views will make her dream to meet Ellen a reality.
+2 votes
5 days ago
CureforCourtney 1,490 points
Courtney appreciated your support Rosie & Olivia. #strengthinnumbers #cureryr1 #findacureforcourtney
skate 250 points
I work with Courtney's "favorite aunt" Marion, who is a supportive champion for her niece.  Courtney, I hope you get to meet Ellen, and I admire your persistence and positive attitude!
+2 votes
5 days ago
CureforCourtney 1,490 points
Thank you for supporting Aunt Marion who is definitely her favorite Aunt! All the support from Mt. Morris has been so appreciated! #strengthinnumbers #cureryr1 #findacureforcourtney
mmlee 1,010 points
Haha... just a little brain washing!!! I’m so lucky to live in the community I do and for all the people who give and show support for Courtney!!!
kmc2001l 200 points
As a mom of a 17 year daughter with RYR-1, I understand the struggle and the importance to find a cure for this rare disease.  It took us 14 years to just get a diagnosis.  For my daughter it affects her muscles and lungs , requiring her to use a ventilator and wheelchair and feeding tube.  Please help Courtney and the RYR-1 Foundation raise awareness.  #nevergiveup
+2 votes
4 days ago
CureforCourtney 1,490 points
Thank you for reaching out and know that I will not stop advocating or fundraising until my last breath! #strengthinnumbers #cureryr1 #findacureforcourtney
Carneiro Jr Brasil 190 points
Congratulations Courtney, let´s go all together for RYR-1 cause...God bless us all. Orlando Carneiro Jr, 55 years old with CNM  - Brasil
+2 votes
4 days ago
CureforCourtney 1,490 points
Thank you for taking the time to support us! #strengthinnumbers #cureryr1 #findacureforcourtney
Reebr 180 points
Good luck and prayers for you Courtney.
+2 votes
4 days ago
CureforCourtney 1,490 points
Thank you for keeping Courtney in your prayers and supporting us! #strengthinnumbers #cureryr1 #findacureforcourtney
Scott11 180 points
We pray for Courtney's health. She is a wonderful young girl.
+2 votes
3 days ago
CureforCourtney 1,490 points
Thank you for keeping Courtney in your prayers and supporting us! #strengthinnumbers #cureryr1 #findacureforcourtney
Seville_chapman 180 points
Keep up the fight !! YOU got it!!
+2 votes
3 days ago
mmlee 1,010 points
Thank you Seville!!! Your pretty amazing yourself!
CureforCourtney 1,490 points
Thank you for supporting Courtney on this journey! #strengthinnumbers #cureryr1 #findacureforcourtney
Cwaterhouse 220 points
I know Courtney from the Muscular Dystrophy Association summer camp. She is such a sweet girl with a bold and strong personality and our cabin would definitely not be the same without her. She brings such a fun energy to camp and I am so thankful to have ever met her. You would be lucky to get to meet Courtney and have her on the Ellen show. Let's raise some awareness on RYR-1!!!
+2 votes
3 days ago
CureforCourtney 1,490 points
Courtney LOVES her MDA camp family so much! You came into her life at a time when friends were walking out and provided unconditional friendship! For that I will be forever grateful! It was hard as a mother to listen to her cry, ask what was wrong with her and so many awful feelings! I can never repay you all! #strengthinnumbers #cureryr1 #findacureforcourtney
MEgan4court 840 points
I am a proud member of TEAM COURTNEY!  She is a hero to many, including me.  Courtney takes karate with three children of my children.  Courtney is an example of strength and gives faith in the human spirit.  TEAM COURTNEY is a family and this family fights TOGETHER!
+2 votes
3 days ago
CureforCourtney 1,490 points
Courtney LOVES her karate family just as much as her MDA family you all brought a sense of community and friendship she was desperately wanting to be a part of! Thank you from the bottom of my heart! MODESTY, COURTESY, INTEGRITY, SELF CONTROL, PERSEVERANCE and INDOMITABLE SPIRIT!
Alc8941 180 points
Courtney is a super star! She deserves all the best. Ellen youd be lucky to meet her!
+1 vote
5 days ago
CureforCourtney 1,490 points
Thank you for supporting Courtney on this journey! #strengthinnumbers #cureryr1 #findacureforcourtney
jms7800 740 points
Courtney deserves this so much! She is so strong and an inspiration to us all! We love you so much!
+1 vote
1 day ago
CureforCourtney 1,490 points
Thank you , rough day today! She vomited and passed out in shower!
janenek 150 points
I have known Courtney's mom Amy for about 20 years. She is the most selfless person I have ever known!  There is not a day that goes by that she isn't trying to do for others. She has been fighting for years to bring Courtney's rare disease to the forefront.  She has instilled the same tenacity in her daughter which is why Courtney is doing as well as she is at this point. Like I said...Amy  has spent her life doing for others- as an RN , as a Nurse Practitioner, as a wife, as a friend, as a daughter and most of all...as a Mom! Please help Amy and Courtney make one of their dreams come true. It would be so amazing to finally see life full circle and have Amy and Courtney on the receiving end. ❤❤❤
0 votes
13 hours ago
JennaWac 160 points
Courtney is one of my really good friends. She is one of the nicest, sweetest, funniest people I know. She has amazing courage that I could never have! I hope that her dreams come true!! She deserves a cure and really deserves to meet ELLEN!!! Love you Court!!!<3
0 votes
10 hours ago