This little warrior has DIPG yet still remains positive. When so many feel entitled to complain about insignificant issues, this little man just wants to live, go to school, and spread his infectious sunshine. I hope that somehow Deany's request to meet his two idols becomes a reality for him. He even said Ellen was a nice girl! Such a compliment coming from this sweet child. Deany has beaten the devastating odds so far by receiving experimental treatments. He is undoubtedly helping other children who will receive the same diagnosis of DIPG. His family still needs help! The treatments are not covered by insurance. As Jimmy Kimmel said when his son was born with a heart defect, a child's life should not be decided because of money. Please help Deany
Deany is such a sweetheart!! It hurts my heart to see what this little fighter has been through, but it warms my heart to know that he's not giving up AND he's there to support his friends who are fighting DIPG right beside him. He deserves to get something that he wants...and he would LOVE to meet Ellen. We love you Deany!!! #DeanyStrong
#deanystrong is my hero! He fights harder than any little guy should! Please help him continue to fight!!
Hang in there, Deany! You are the strongest and most positive little boy I know! Keep fighting! We are all praying for you! #DeanyStrong
#DeanyStrong is such an understatement. He is making medical history and paving the way for more lives to be saved! An amazing young man and family. Every day is a blessing. Deany deserves all the blessings.❤
I am Ashley, Deanys Mom. Deany watches all of your shows on YouTube and particularly loves the ones where you scare people. Anyway, he has been fighting an inoperable brain tumor for almost 11 months. He is just six. He knows exactly what he has and what could happen, but he could care less. He has such fight and will to live that he doesn’t let it phase him. When he was diagnosed we were given 9 months but he’s beaten it. He is in school and doing everything he should at his age, except for living with a monster in his head ready to attack at any moment. This cancer has no cure and is terminal upon diagnosis. He is a happy loving kid that has given so much to so many. He has taught so many people what life is about and how to see things differently. I am so beyond blessed to have been chosen to be his mom. I don’t know what I’d do without him. Treatment is expensive and we are out of money. If we stop this treatment he will die. That’s a fact. Him and his big brother are my worLdw. Thank you for reading. We love you Ellen.
Deany deserves this! He loves watching Ellen and he really needs help monetarily so that he can continue treatment in Mexico for DIPG. It’s unfortunate we don’t have the resources here in the United States to help him but he is seeing great results from the clinical trial in Mexico and needs to be able to continue the trial! Please pick him!
Deany is a bright sunny child and him and his mother are facing this monster and battling bravely. He has a smile that will brighten your day and melt your heart. So many children are fighting this same killer and its time to show people just who the ones fighting are and Deany would be a worthy spokesman thank you
My life has been forever touched by this young man. Despite what he is battling, he always has a smile on his face and is so positive! He is a shining light in this negative world! I pray that everyone can learn from him and that in return we can continue to keep his treatments going and find a cure for this evil disease before more innocent lives are lost. Together we can accomplish this!! #deanystrong
Such a sweetie! He deserves the world, definitely not the monster! We love you, Deany!
#Hestolemyheart
#Deanystrong
#Hestolemyheart
#Deanystrong
Praying that Ellen sees this. All the best for Deany and his family. #deanystrong
Deany is such a strong, sweet, thoughtful boy. To not only have cancer as a child, but brain cancer, to have to travel to Mexico for treatments AND help fund raise for his treatments. He doesn’t sit around feeling sorry for himself...he LIVES each day. #DeanyStrong
Ellen please help Deany! He has the biggest heart of anyone I know! He didn't want Christmas presents this past year all he wanted was a chance to live! He needs money desperately to continue his treatment so he can keep fighting! #DeanyStrong
This sweet boy deserves this! He's such a fighter, and has such a sweet heart and positive attitude. Please help make his wish come true!! <3 #deanystrong
#deanystrong my son always is excited for the fund raisers they have at school for Deany....this boy is an inspiration to his peers as well as adults! Stay strong!
#deanystrong please pray for this sweet child and his family.
Imagine taking your child to the doctor. Maybe he has a lazy eye and you're thinking he may need glasses. Maybe he fell down at school and you want them to check for concussion. But the doctor hits you with it out of nowhere: cancer. You gather your thoughts and your shock and then you find your resolve and you ask the doctor what kind of treatment he's offering. And the doctor says, gently, "I'm sorry, but there isn't any."
Take your baby home and love him. Take him home and watch as this monster called DIPG grows larger in his brain stem. Watch as he loses the ability to walk on his own, to swallow, talk, and breathe. Watch as his beautiful face you've kissed a million times is puffed up and stretched to the skin's limits from steroids. Watch as your brave child goes through radiation treatments to MAYBE give you a little more time. And try to hold yourself together and be strong for him as he watches all this happen to him, because DIPG patients are aware of everything that's going on. Their higher brain functions aren't affected. They are still the same kids inside until the end, watching as they lose abilities and functions day by day.
No matter what, your child received a death sentence when DIPG was diagnosed. If you're lucky he'll have a year to live. There hasn't been any significant change to "treatment" since Neil Armstrong's two-year-old daughter died of this disease in 1961. Most of the research done is funded by private donations and the passion of parents and family members who have lost children because of DIPG. It's unacceptable in 2018 in America that doctors have to say, "I'm sorry, there is nothing we can do" to a child diagnosed with cancer. Please, please help bring awareness to this monster and share Deany's story.
Take your baby home and love him. Take him home and watch as this monster called DIPG grows larger in his brain stem. Watch as he loses the ability to walk on his own, to swallow, talk, and breathe. Watch as his beautiful face you've kissed a million times is puffed up and stretched to the skin's limits from steroids. Watch as your brave child goes through radiation treatments to MAYBE give you a little more time. And try to hold yourself together and be strong for him as he watches all this happen to him, because DIPG patients are aware of everything that's going on. Their higher brain functions aren't affected. They are still the same kids inside until the end, watching as they lose abilities and functions day by day.
No matter what, your child received a death sentence when DIPG was diagnosed. If you're lucky he'll have a year to live. There hasn't been any significant change to "treatment" since Neil Armstrong's two-year-old daughter died of this disease in 1961. Most of the research done is funded by private donations and the passion of parents and family members who have lost children because of DIPG. It's unacceptable in 2018 in America that doctors have to say, "I'm sorry, there is nothing we can do" to a child diagnosed with cancer. Please, please help bring awareness to this monster and share Deany's story.
Such a sweet little boy! We would love to see him meet Ellen! #deanystrong
Ellen would have a blast with Deany on the show! Tell me he is not just about the cutest thing you have ever seen. We love you sweet Deany and I hope you get to meet Ellen. #DeanyStrong
Deany is so sweet.... it's hard to imagine being 6 and knowing the reality of what he faces.... he is always smiling.... he's been through so much yet he smiles and brings joy to others... what a wonderful blessing he is.... and his mom Ashley is fighting every day to do all she can to help him and other children fighting this horrible monster.... it would bring so much joy to the warriors who stand behind him in prayer and support to see his life touched by someone as wonderful as Ellen.... he deserves great things for the bravery he exhibits and the love and joy he shares with the world.... fight on Deany.... we love you!
Deany is a walking miracle! Nothing is stopping him from fighting DIPG all while still being a first grader and doing the things other first graders do. He was a joy to have in kindergarten with his quick wit and funny personality. His smile can light up a room. His strength could move mountains! It is time we recognize this disease and how it effects our children. By helping Deany, we are getting the word out that more needs to be done to help others and Deany, too! #DeanyStrong
This little boy deserves the world! So strong and still fighting! #DeanyStrong
What an amazing kid! So glad his treatments are working but he needs awareness so he can be treated here in the US! #DEANYSTRONG
I first found out about Deany at a Zumbathon fund raiser last September. I had never heard of DIPG before that. Since then, as I’ve learned more about this family, I have been so impacted by Deany’s story and the sheer strength and grit of his mom. As a mom, I would do anything to save my kids, and I know how desperate she must feel at times. We need to keep Deany in treatment!! This clinical trial in Mexico is his only hope right now, but none of it is covered by insurance. They are living month-to-month, literally wondering if they can make the following month’s trip. Please help him, Ellen! We need to get the word out about this horrible childhood cancer and find a cure!
Deany is so BRAVE! We won’t stop fighting, fundraising, praying and supporting every effort until you are cancer free. #deanystrong
Keep Fighting Deany! #DeanyStrong
My favorite picture of Deany is when he was helping his friend, another little boy, go through DIPG treatment. Deany had just been through his own round of treatment, and wanted to help his friend get through the pain with words of encouragement and by holding his hand. How does a 6 year old who has gone through so much still have such a big heart and so much to give? He is a wonderful example of what is needed in this world. #Deanystrong
Deany is a warrior who shouldn't have to be, thrown into a battle with a terminal brain tumor that he's determined to beat. And he will defeat DIPG. He's already defied the odds and is still here making us all laugh with his ridiculously adorable sense of humor, and rallying supporters around the globe who all just want to give him a chance to grow up. Be a part of Deany's healing journey. He can do it with our help!
Deany has captured the hearts of our community. He is such a kind and loving little boy who starts every day with a smile.
He's been in treatment for DIPG for almost a year, yet is constantly thinking about ways to help others who may not have toys under their tree, books to read or even a warm meal for dinner. Let's continue to work together to keep him in treatment. Let's petition the insurance companies to consider covering his life sustaining treatment. Let's pray for hearts to be softened and minds to be open to bringing the life sustaining treatment to the United States so more children are able to benefit from it.
He's been in treatment for DIPG for almost a year, yet is constantly thinking about ways to help others who may not have toys under their tree, books to read or even a warm meal for dinner. Let's continue to work together to keep him in treatment. Let's petition the insurance companies to consider covering his life sustaining treatment. Let's pray for hearts to be softened and minds to be open to bringing the life sustaining treatment to the United States so more children are able to benefit from it.
#deanystrong forever ❤️
@Ellen_Authentic #EllenDegeneres #Ellen
#ellenNation Please pick #DeanyStrong He represents the thousands of children whose childhood has been robbed by DIPG. These children seem fine one week and the next week they suddenly have trouble walking or their eye turns inward and the MRI reveals a tumor in the stem of their brain: DIPG
These kids then spend all of their remaining days, weeks and months fighting to live. These little warriors are willing to fight for as long as it takes and each of these children fight to their very last breath. Sadly, if the family can only afford to seek treatment through insurance, their child's chance of survival in the United States is no better today than it was 60 years ago. Why? Because our legislators are not fighting to approve promising treatments! Not only is our government not adequately funding research to save these kids, the FDA is not approving promising immunotherapy treatments that can save these kids' lives. So either the parents take their child home to slowly, painfully watch them die OR they spend every penny they have and humbly fundraise to neighbors, friends, family, anyone who will spare a dollar so they can privately pay for treatments that are leading to a cure.
Can you imagine having to fundraise to save your child's life??? How tragically horrific!
And why must they do this? Because insurance will not cover treatment that allows drugs to be interchanged as needed to adapt to the child's response and United States lawmakers are not pressing the FDA to approve treatments that are showing immense promise just across the border in Mexico.
Ellen, please invite Deany to be on your Show! Introduce the world to this beautiful little boy, who happens to have the deadliest type of brain cancer that almost always strikes during the heart of childhood.
Ellen, with your influence, you would not only bring awareness to DIPG but you would increase the chance for a cure to be found so that Deany (and every other child he represents) can stop spending childhood fighting to live and instead could just get back to playing and being a kid.
#ellenNation Please pick #DeanyStrong He represents the thousands of children whose childhood has been robbed by DIPG. These children seem fine one week and the next week they suddenly have trouble walking or their eye turns inward and the MRI reveals a tumor in the stem of their brain: DIPG
These kids then spend all of their remaining days, weeks and months fighting to live. These little warriors are willing to fight for as long as it takes and each of these children fight to their very last breath. Sadly, if the family can only afford to seek treatment through insurance, their child's chance of survival in the United States is no better today than it was 60 years ago. Why? Because our legislators are not fighting to approve promising treatments! Not only is our government not adequately funding research to save these kids, the FDA is not approving promising immunotherapy treatments that can save these kids' lives. So either the parents take their child home to slowly, painfully watch them die OR they spend every penny they have and humbly fundraise to neighbors, friends, family, anyone who will spare a dollar so they can privately pay for treatments that are leading to a cure.
Can you imagine having to fundraise to save your child's life??? How tragically horrific!
And why must they do this? Because insurance will not cover treatment that allows drugs to be interchanged as needed to adapt to the child's response and United States lawmakers are not pressing the FDA to approve treatments that are showing immense promise just across the border in Mexico.
Ellen, please invite Deany to be on your Show! Introduce the world to this beautiful little boy, who happens to have the deadliest type of brain cancer that almost always strikes during the heart of childhood.
Ellen, with your influence, you would not only bring awareness to DIPG but you would increase the chance for a cure to be found so that Deany (and every other child he represents) can stop spending childhood fighting to live and instead could just get back to playing and being a kid.
#DeanyStrong. Ellen get this little fighter on your show! Help parents see that there are more options out there to treat DIPG. And hopefully get insurance company to start covering a treatment that is working.
Deany and his family are amazing! This kid is a true warrior. Him and his family deserve a break to just have some fun together! #Deanystrong is helping bring awareness to all the kids fighting DIPG - we need more awareness and research and better treatment in the USA !! Familes shouldn't have to be constantly fundraising to keep their kids alive. Please help this very deserving family Ellen!!
Deany and so many others are fighting cancer - it is sinful!! Saddens me to see what these kids have to go through, but it they don’t giving up which is wonderful. Deany is there to support his friends who are fighting DIPG right beside him. He and all the children fighting cancer deserves to get something that they want...and he would LOVE to meet Ellen so please select him to meet Ellen. @Ellen_Authentic
#EllenDegeneres or #Ellen
#EllenDegeneres or #Ellen
Little Deany is an AMAZING Boy! I have been following his story from the beginning of his diagnosis and I have so much love for this little guy and his family.
#DeanyStrong
#DeanyStrong
#Deanystrong ❤ Deany I love you so much! You are such an amazing little boy who has taught us all so much over the last 10 months. Your selflessness in your darkest hours shows what a true warrior you really are. It has been an honor being a part of your journey. You bring hope to those who don't have any. Keep fighting! I hope you get your wish to meet Ellen. I don't know anyone more deserving.
Keep fighting Deany, you are so brave and deserving of a lifetime full of opportunity and blessings. My wish is a cure for childhood cancer especially this monstrous tumor known as dipg. You are not alone and have slot of people standing behind you and all fellow dipg fighters and angels. Hopefully this will bring more attention to dipg
I am so inspired by Deany, Ashley, and the rest of our community in supporting the family. I hate cancer, but especially pediatric cancer. Deany is such a warrior fighting this disease. He's always helping out at fundraisers and doing so much in addition to fighting DIPG. He's so deserving to meet Ellen, I can't wait to see that episode! #DeanyStrong
Deany deserves to win! Ellen, pick Deany! I'm sure he'd dance with you!!! #DeanyStrong
Our little Picktown hero brings a smile. Please don't let this smile fade. #deanystrong
#Deanystrong Keep fighting little man! You can do anything!!
Deany we are all rooting to see you fulfill your dream of meeting Helen - who indeed is a wonderful human being. Go for it! #DeanyString
Hi Deany, this is your buddy, Jered from Michigan! You and I sure have come a long way, haven't we, dude? You will always be my warrior brother, and I just want you to know that I love you oh SO much! I love our talks on the phone, and I am continuing to raise awareness to pediatric cancer, not only as an advocate but as a childhood cancer survivor as well. You will ALWAYS be a brother to me, and I love you with all my heart! Brothers in gold forever and always! ♥♥♥♥
Vote for#DeanyStrong
Ellen please help us bring awareness to DIPG. It is killing our children and there is no cure for this horrible brain cancer. Please show a segment to raise awareness for the many children who are suffering from this horrible brain cancer! Thank you! #defeatDIPG
You know a kid is an amazing fighter when an entire community comes together to help him and his family!! #deanystrong
Deany is such a brave boy! He fights his battle with courage. Help him meet Ellen! #deanystrong
This little guy and his family are done of the most courageous and upbeat fighters I know. No is not an answer and Ashley will stop at nothing for her son! Please give this child a moment of his dreams and in the process a chance to educate the world on this disease and the many brave souls fighting this battle daily
STAY STRONG DEANY! YOU ARE A BIG FIGHTER! #deanystrong
Of course ALL types of cancer are devastating and, in a perfect world, we will one day find a cure for each and every one of them. But today, right this very moment, I can't help but to remain confused as to why more research and effort isn't put into childhood cancers. Children are our future! They are the future doctors and researchers of tomorrow. They've yet to live their life. And what childhood they have they lose because they are forced to grow up all too quickly as they prepare for the fight of their lives. No child should ever have to endure such a fate and no parent should ever have to hear the words "your child has cancer." But Deany's parents have had to hear those words and Deany has had to endure some pretty grown up stuff. But they suit up every day for battle nonetheless. They do so knowing that they are not only fighting for their family but fighting and making advances for so many other families dealt the same terrible deck. They fight for each other while the rest of the world is still painting everything pink instead of gold.
I may not be a doctor or a researcher but I can do my part to try and help Deany not only meet Ellen but do so while hopefully raising awareness about childhood cancer!
Good luck on your quest to meet Ellen, Deany! She'll ADORE you! Keep up the fight!
I may not be a doctor or a researcher but I can do my part to try and help Deany not only meet Ellen but do so while hopefully raising awareness about childhood cancer!
Good luck on your quest to meet Ellen, Deany! She'll ADORE you! Keep up the fight!
I love you sweet boy, and hope you get to see Ellen!! You are so brave and sweet. Every single video you make... makes me smile. You are adorable, and so handsome Deany! You are truly MY HERO! I think you are going to beat DIPG, and show em' all how tough you really are buddy!! Ellen would have a blast talking to you, and would love you so much. I just can't wait to see you on her show. I know you'll love talking to her and telling her all about DIPG and how we all want to end it forever so that no other kid has to go through all the tests and treatments...and just be able to be a kid... right Deany?? :) You deserve to have your wish come true, and I just know it's gonna' happen for you. Keep fighting, and stay strong. Know that so many people are praying for you, and keeping you in their thoughts. Hugs and love and prayers. Mrs. Phyllis <3
I hope Deany continues to enjoy life to its fullest and gets to meet Ellen. He is such a strong sweet boy. DIPG desperately needs the attention that wonderful people like Ellen can provide. We need to find a cure so we don’t lose any more adorable children. Good luck Deany. I hope to see you on the Ellen show.