+311 votes
Usher syndrome Challenge from Rebecca Alexander
Description
Usher syndrome Challenge from Rebecca Alexander
Credits: Rebecca Alexander
7,183 views Mar 8

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Tara Ostarly Ryan 270 points
Amazing and such a great cause!!
+6 votes
Mar 10
Jodi Reeves 270 points
I love this video!!! My daughter has Usher Syndrome 1. She is 21 years old. Because Usher Syndrome is a low incident population there has not been enough research and attention focused on this genetic condition. We need ELLEN to bring more awareness to  this syndrome!!! Please! Please help us share our message of struggle and HOPE with the world!!!!!!
+6 votes
Mar 10
ciavmom 260 points
I have two daughters with Usher 1F. While they hear and speak well thanks to bilateral cochlear implants, they are facing losing their vision. This is a wonderful way of highlighting a disease that has not received the attention it should, including a lack of NIH funding for research.
+5 votes
Mar 10
Mkoutrakos 330 points
LOVE THIS!!
+4 votes
Mar 10
mdpcpa 230 points
What a great cause and such inspiring stories of living with Ushers.  Love!!
+4 votes
Mar 10
artsforush 230 points
I have 2 children living with Usher Syndrome, they are progressively going blind and deaf. Thank you Rebecca for representing all people living with USH and Ellen please help us!
+4 votes
Mar 10
Joanne Candlen 240 points
Amazing!  Love this video!  Such an important and underfunded cause.  PLEASE help!!
+4 votes
Mar 10
Lashapiro 230 points
My 29 year old amazing daughter has Ushers Syndrome 1f. On her own, she managed to graduate college with honors and pursue a career, but wants to "see" the world. Help Dorie and others to fight this disease that robs them of so much beauty in the world...both visually and auditory!
+4 votes
Mar 10
Peter Devlin 220 points
May your fistful of candles shine a light on our twilights and the dance of your footsteps bring noises to our silences! I have Usher Syndrome and we really need a cure for it.
+4 votes
Mar 10
chanley51 270 points
Love the video!  Good luck!
+4 votes
Mar 10
amkatchFFB 240 points
Great job Rebecca and all who contributed!  My husband has Ushers 2A and we are working with Foundation Fighting Blindness, but we need more awareness and $$$ for research.  Thanks to everyone who is helping!
+3 votes
Mar 10
Molly C. Corum 200 points
This is an invisible problem. Most have hearing loss very young. Then blind spots, to tunnel vision to blindness. I started wearing hearing aids in 1st grade. (1954)  School was not easy. Noticed the blind spots in my mid 30's. Diagnosed with Usher Syndrome age 40, 1988. I am so grateful for the research.  ( love my two cochlear implants too) .
+3 votes
Mar 10
ChrisG 320 points
Way to go Rebecca -- you are awesome and an inspiration to everyone facing adversity in their life  -- the video is incredible and the back-up dancers deserve to shine on stage with Usher at a benefit concert.  If we all team together, create world-wide awareness we can End Usher Syndrome. Come on world, let Ellen and Usher know you care!!!
+2 votes
Mar 11
CarolHaik 160 points
Awesome!!!
+1 vote
Mar 11
Anna Kurniawka 160 points
Love the video and am touched by your show of strength, your struggle and the hope you continue to have.  ELLEN please help to bring more awareness to this syndrome!  Please everyone help spread the information about Usher syndrome which robs people of their hearing and sight!  Good luck and keep up the fight!  Saying prayers for you!
+1 vote
Mar 12
Penny Lutsi 150 points
My amazing 29-year-old cousin has Usher Syndrome 1F. Although Dorie was born profoundly deaf and is now losing her vision, she personifies the words grace and beauty. She is fiercely independent and hopeful that a cure will be found to save her vision. Ellen, please help to increase awareness of Usher Syndrome.
0 votes
Mar 11
Stacey Phillips-Mall 280 points
My son was diagnosed 2 months before his 21st Birthday.  He turned in this driver's lic. on his 21st Birthday.  He is a student at RIT.  Usher2a  severe hearing loss 23 degrees field of vision.  Now 23 yrs. old  #findacure4usher   <3
0 votes
Mar 11
hendibrahim 150 points
My Son has Usher Syndrome type 2C, and this made me cry . My son who is 4 years old now, is born deaf and will be losing his vision. it was hard dealing with deafness, but when I think about losing his vision too, I wish I can do something to help him, I would give him my own eyes to see, and my ears to hear, I wish there would be a cure. wishing and praying is all I got, and together we could make it happen.
0 votes
Mar 19