Rare & Undiagnosed Disease Day.
We care about Rare because we're raising Rare.
We're raising Undiagnosed.
The easiest way to describe this Rare & Undiagnosed journey is to imagine you are in the battle for your life, or for your child's life, but you are blindfolded. The only way to survive is to play defense. You don't see anything coming, you are just stuck in defense. Treat the symptoms and wait in fear and not knowing where the next attack will come from. As long as Stockton is Rare & Undiagnosed we will never get to play offense. We will never get the upper hand in this fight. I would give everything to be able to take this blindfold off.
Rare & Undiagnosed is absolutely as terrifying as it sounds. When fighting for a life, how could it not be??
I have decided to go out on a limb today.. almost 2 years ago we received an email from the Ellen show requesting our story. It scared me and so I never sent it. In talking with my husband ever since we feel we are doing a disservice to Stockton by not submitting his story.
Credits: Team Stockton Perry