+421 votes
Ellen Meet Ivy
Description
I am writing this in a desperate plea for my daughter. I am writing this with a broken heart and tears because I may have wasted too much time. Ivy is 3 and she is running out of time to live. For the past 3 years, our family has worked so hard at keeping her healthy and each day we just survive...Ivy has never lived. My purpose for reaching out is to bring awareness to Rett Syndrome and how it is taking our girls. It's a silent thief that stole my daughter, piece by piece. Ivy used to sit alone. And she played patty cake and said "mama"...within months, all of that was taken and replaced with seizures and pain and terror. Rett syndrome leaves these girls mentally intact, so Ivy is aware that she is in a prison...her prison is her body. Don't let her suffering and joy and her life be in vain. Help Ivy's Army be a voice for girls that have something to say, but no way to say it. I know our followers from our page, Mighty Ivy, have pounded your website with nominations. They love her. They have seen the suffering firsthand and they know the urgency for Ivy. They know the urgency for ALL people suffering with Rett. Help Mighty Ivy leave a Mighty legacy. She deserves to be remembered and honored. To know her is to love her. Just ask her adoring followers...all 11,500 of them.
We love you, Ellen. We love what you do and who you are. You're a light in a dark place for families like us. Thank you.

Credits / Contact:
Mighty Ivy
16,004 views Nov 4, 2016
anonymous

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+26 votes
Nov 5, 2016
+20 votes
Nov 5, 2016
+20 votes
Nov 5, 2016
+17 votes
Nov 5, 2016
+15 votes
Nov 5, 2016
Fromtaxtomom 350 points
#EllenMeetIvy A beautiful child fighting Rett Syndrome.  1 in 10,000 girls are born with this syndrome.  Please meet Ivy and help bring awareness to this disease that has devastated Ivy, her twin sister, and her parents.  It seems time is running out for Ivy but, you can help make her suffering not be in vain by bringing Retts awareness to the world.  Scientists are very close to finding a cure.  With your help, I feel this cure would be sooner.  No one should have to go through all Ivy, her parents, and so many others have been through. #EllenMeetIvy #RettAwareness
+13 votes
Nov 5, 2016
Sharon Wilson
Please meet this blessed child....
Myhaven 110 points
Please help spread awareness of Rett Syndrome .... Please acknowledge this little girls family and let them know that there dreadful life has had meaning and that Ivy will be a small cog in the larger machine in the fight against Rett Syndrome.  #EllenMeetIvy #RettAwareness
Crystal Lane 340 points
I have been following IV for over a year she's a beautiful little fighter
+12 votes
Nov 5, 2016
Linda Blanck 350 points
Ivy and her family has and is going thru what no family should ever have to experience. We pray for this family every day, please help bring attention to this horrible disease Ellen. No mother or child should have to suffer every day like this, nor should any family member. Thank you Ellen .......
+12 votes
Nov 5, 2016
KarenDiTusa 340 points
#EllenMeetIvy Please!
+11 votes
Nov 5, 2016
Dena Marie 350 points
+11 votes
Nov 5, 2016
+9 votes
Nov 5, 2016
+7 votes
Nov 5, 2016
RosieJo51 290 points
#MeetMightyIvy and learn more about Rett Syndrom
+7 votes
Nov 5, 2016
+6 votes
Nov 5, 2016
Churchlady5880 260 points
#ELLENMEETIVY. please, Rhett Syndrome needs the exposure, Ivy needs this.
+6 votes
Nov 5, 2016
Naniof2boys 280 points
#EllenmeetIvy please please Ellen,we love this sweet baby girl!
+6 votes
Nov 5, 2016
Denise Sellers 460 points
#MightyIvy #EllenmeetIvy #ButterfliesFairytalesandMS #nevergiveup #prayerwarriors #IvyNation  You  will love her as much as we all do. She loves music so you could dance with her while bringing attention to this horrid disease.
+6 votes
Nov 5, 2016
SandyD 240 points
I have been following Ivy.. She is easy to love her and her family. Please Ellen meet them you will fall in love with this sweetheart Ivy. We need to educate people about Rhett Syndrome...
+5 votes
Nov 5, 2016
Laura Johnson 240 points
Rett Syndrome needs help to be noticed. Too many little girls are being taken away from their family. You can't help but fall in love with Our "Mighty Ivy" Please Meet this wonderful family and help their cause.
+5 votes
Nov 5, 2016
Dusty Evans Pierce 250 points
EllenmeetIvy
+5 votes
Nov 5, 2016
Boyscoutmommy 460 points
#meetmightyivy
She and her family are an amazing family.
+5 votes
Nov 5, 2016
Barrington91 240 points
#ellenmeetivy she is such a precious baby!!!
+5 votes
Nov 5, 2016
Carla Woodard Mahr 240 points
Mighty Ivy = Rett Syndrome awareness
+4 votes
Nov 5, 2016
+4 votes
Nov 5, 2016
cyberwebb 240 points
Please help this family get the awareness out! #ellenmeetivy
+4 votes
Nov 7, 2016
Sue Cohoon 440 points
#EllenmeetIvy Please Ellen,  you will be amazed by sweet Ivy and her family. Rhett Syndrome is a horrible disease and you could help so much by bringing awareness to the public.
+3 votes
Nov 5, 2016
Julie Evans 210 points
Please Ellen!!!
#ellenmeetivy
+3 votes
Nov 5, 2016
kmirizarry 200 points
Everyday this child makes it though is a struggle. She is a tough and deserving little lady fighting a huge battle.  Grant Ivy's wish!!  #ELLENMEETIVY
+3 votes
Nov 5, 2016
Ruthanne Kamphuis 210 points
Ive is has Rett  syndrome  and she dosent have many days but when you see her she brings you in with her eyes she varry  special  her parents do sooo much and  literally do not sleep for days  on end shed like to meet you pleasss have her and her parents ohhh she has a twin sister that would love to see you too
+3 votes
Nov 5, 2016
savedbygrace03 210 points
#ellenmeetivy Please meet this precious baby
+3 votes
Nov 5, 2016
Tammy Overby Radclif 210 points
#ellennation please give some love to Ivy!
+3 votes
Nov 6, 2016
Abbyjetty 750 points
Please look into Medical Marijuana. Raw cannabinoids are nonpsychoactive. Another little girl with Rett Syndrome had her seizures virtually disappear and only have 2 in one year! Please research into it. Here is a link with the story of this girl and her fight against Rett Syndrome. http://www.cbdscience.com/brookes-amazing-story.html
+1 vote
Nov 7, 2016
colleeneggert 190 points
#ellenmeetmightyivy she is the most beautiful and brave little girl that smiles despite the horrendous pain she is in.
+1 vote
Nov 7, 2016
rrich 230 points
Please Ellen help Ivy and her twin sister and family.  She is so sick and needs help, the kind of help you could make happen.  Please before it is to late for this precious family.
+1 vote
Nov 8, 2016
NaeNae2013 170 points
Help and support awareness for Mighty Ivy

#ellenmeetmightyivy
+1 vote
Nov 9, 2016
wheeze6406 180 points
Ellen, meet Ivy!
+1 vote
Nov 11, 2016
donnamct 160 points
please meet this precious girl....Been a part of my life since day 1
+1 vote
Nov 11, 2016
Bapril 160 points
Meet ivy
+1 vote
Nov 12, 2016
+1 vote
Nov 12, 2016
Barbara Rands Valent 170 points
LOVE me some Mighty Ivy!
+1 vote
Nov 16, 2016
stanley1 140 points
please pick this little girl the whole family needs some good times and fun in their lives.
0 votes
Nov 11, 2016