+16 votes
Addie’s NICU and PICU story - The Vintage Modern Wife
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Oh where do I begin? SO many people have asked me about Addie’s story, but I’ve been neglecting to take the time to write it all out because it’s so long and it’s ever-changing. I know it’s long, but if you really want to get to know our girl, this is her full story (for the most part).


When Mathew and I went for our 18 week anatomy scan at my OBGYN they noticed something was different during the appointment. We had just found out Addie was a girl, but that she had some sort of physical abnormality. We were sent to a maternal fetal medicine doctor who determined Addie had a sacrococcygeal teratoma (basically a tumor on her bottom). We also had genetic testing done through an amniocentesis and found out that Addie has an imbalanced translocation with her chromosomes. One of her chromosome strands from 1 and one of the strands from 5 were swapped with each other, and she had more of chromosome 1 and less of chromosome 5 than a typical person. What that meant for Addie- we honestly had no idea. With scans every other week, appointments and MRIs in Houston at Texas Childrens, and more, it was a rough pregnancy- yet I loved every minute of it.


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Our doctor told me that Addie would need to go to the NICU straight after being born until it would be time to have surgery to remove her SCT. He also told me because of my pre-eclampsia and cholestasis that I would need to deliver at 36 weeks. Of course, Addie had other plans and came a few days before my scheduled c-section- August 26, 2014 at 5:48 am at 5 lbs 11 oz and 18 inches long…and she wasn’t screaming at the top of her lungs. I was so worried but thought maybe they had been so quick to take her that I hadn’t realized she cried.


Addison's story, The Vintage Modern Wife


Once we got to see her, she had a nasal cannula because she was having breathing difficulties- something I never imagined she would have. Tests would also reveal later that she had a PDA (a hole in her heart) that would need fixing. So instead of one surgery, we realized Addie would also need heart surgery.


Within her first 2 weeks of life, Addie had surgery to fix her PDA as well as surgery to remove her teratoma. After each surgery we realized what a fighter we had! She was so strong and resilient! During this time, Addie was also intubated. She needed a breathing tube down her mouth to provide oxygen to her because she had breathing problems that we couldn’t figure out. After several months of being intubated and not being able to extubate, the discussion came that Addie would need a trach.


Addison's story, The Vintage Modern Wife


We fought so hard and had many tears over her breathing issues because getting a trach would mean another 2 surgeries- one for her trach and another to have a g-button because trach babies usually can’t eat by mouth. We always knew that Addie would get anything she needed medically, and we knew she needed her trach, so in November she had her 3rd and 4th surgeries.


Addison's story, The Vintage Modern Wife


After a few weeks with her trach, Addie started taking milk from a bottle after lots of research on my part and a swallow study. It was such a huge milestone for her! I love being able to feed her and I know she enjoys her milk so much.


 





A photo posted by Stephanie W. (@mathewsbambina) on Apr 25, 2015 at 7:30pm PDT




In December we were told we needed to go to Texas Childrens Hospital in Houston (4 hours away) because Addie needed a procedure for her heart. She has pulmonary valve stenosis and needed a cath in order to help open the valve. Addie and I got to fly by helicopter while Mathew drove there with my mom. Addie stayed 9 days even though this was supposed to be a procedure mostly done outpatient where patients could go home the next day. It was horrible. Mathew saved Addie from dying once because we had neglectful nurses. We couldn’t hurry fast enough to get back to Temple so Addie could be home for Christmas, and she never had her procedure because she got sick while she was there. We were so lucky to be able to spend Christmas, New Years, and Valentines at our local hospital with Addie and our favorite nurses. Addie was trucking along doing really well, but was having these random spells where she couldn’t breathe. No one could figure out why they were happening, and for a while they stopped. We figured that we had Addie all figured out- but we didn’t. Not only that, but Addie had a brain bleed from some blood thinners and fluid on her ventricles that caused her to have hydrocephalus. February 2nd she had her 5th surgery- a craniotomy to remove the blood and fluid, and some complications with her drain had her back in the OR a few days later for her 6th surgery. Addison's story, The Vintage Modern Wife
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17,951 views May 3, 2016

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Sandra D
Such a wonderful family! I've been following on Facebook and love my Addie updates! Love to see her smile!
+2 votes
May 3, 2016
anonymous
I've been following the story about Addie for a while. This is a wonderful family, overcoming a lot of obstacles.
+2 votes
May 3, 2016
Brittany K
Such a wonderful family and love seeing Addie approving day by day
+2 votes
May 3, 2016
anonymous
So great! She's such a fighter! Waco loves Addie Girl!
+1 vote
May 3, 2016
anonymous
I've been following Addie's story via her mom's blog and instagram for a while ..they are an amazing family and Addie is such a fighter!
+1 vote
May 3, 2016
anonymous
What an amazing & special family. I follow their progess via their facebook paged & have been amazed time & again.
+1 vote
May 3, 2016
Christine Russell
I have been following Stephanie, Matthew and Addie's story since right after Addie was born. We had lost our granddaughter right after delivery and we only had her for 48 hours. Stephanie caught my attention due to her grace and faithfulness to God in all she was enduring. In a little over a year I feel like I know this family. I look for her updates as I woukd my own family on FB. I cheer for them, ache for them and just love them ....they are strangers in the most simple terms though. Matthew has lost his job this past year, Addie has gone back to the hospital several times and even Stephanie has been true victim of hurtful FB judgements and despite it all they remain steadfast and true to all the things they believe in. They were meant to to be Addie's  parents  there is no doubt. They are so deserving to be on your show and share their story with the world. More than they even have already. Stephanie encourages others and gives reassurance to so many. She has helped me get through our pain and I am sure there are thousands more. They could certainly use help with their incomprehensible bills. Ellen do what you do best and touch the world with this beautiful family. You won't regret it.
anonymous
74512
+1 vote
May 3, 2016
anonymous
Please help this wonderful family filled with so much Faith, Love and Commitment! Thank you Ellen!
+1 vote
May 3, 2016
anonymous
Love following sweet Addie on FB. Her parents are a true testimony to the love that only your parents can give you.
+1 vote
May 3, 2016
Chris
I have been following this family for at least 9 months.  Stephanie and Matthew are very devoted to their daughter Addie.  If there isn't a post for a day or two I worry.  I too have a daughter who had multiple medical issues when she was born.  She was on a ventilator had a tracheostomy and many other things.  I admire this family so much.  It can be very lonely when you have a child with these type of medical needs.  You don't just hop in the car and drive to the store.  It takes 2 people to take Addie out. Ellen, please take a look at this family.
+1 vote
May 3, 2016
Nancy Willoughby 160 points
This mom is so dedicated to this beautiful baby. I love reading about the day to day joy and struggle when taking care of a special baby. These parents are the best!!!
+1 vote
May 3, 2016
Brandy
I've been following Stephanie and her family on Instagram and Facebook for over a year.  Wonderful family! Addie is a miracle baby who continues to defy the odds!
+1 vote
May 3, 2016
Wendy in Louisiana
Been following Addie and her family through Facebook and they are in our daily prayers. She's one tough lil cookie!
+1 vote
May 3, 2016
anonymous
She is amazing and so is her mom and dad! Such resilience!
+1 vote
May 3, 2016
anonymous
Stephanie, Matthew & Addie are such a beautiful and inspirational family!  I always look forward to seeing the daily posts about Addie! ~♥~
+1 vote
May 3, 2016
anonymous
What a beautiful family! I love follwing them on Instagram & Facebook. They are so joyful & positive :)
+1 vote
May 3, 2016
anonymous
Addie is such a precious girl! I enjoy seeing her progress and what she is wearing day to day, through Facebook.   Hugs to Mom and Dad, their strength amazes me!
+1 vote
May 3, 2016
anonymous
Addie is such an amazing little girl with amazing parents!
+1 vote
May 3, 2016
anonymous
Wow, y'all have been through so much!
+1 vote
May 3, 2016
anonymous
I've never met this family, but they are such an inspiration to all parents out there. In spite of everything they can always see the positive in every situation. I love reading the posts and updates! It's amazing how you can become so emotionally invested in strangers! It makes sense though when they are kind, loving, and just want the best for their baby girl.
+1 vote
May 3, 2016
maryna
they are such a deserving family. bless this family
+1 vote
May 3, 2016
anonymous
Love this sweet story! All children are a gift from God!
+1 vote
May 3, 2016
anonymous
Love this family. Their faith. Their baby girl.
+1 vote
May 3, 2016
anonymous
this is the sweetest most deserving family!! they have stayed faithful & positive through life's biggest challenges!!
+1 vote
May 3, 2016
Kaysey
I love watching Addie on facebook such a beautiful family! Thoughts and love are with you all each and everyday.  Ellen please take a look into Addies story ♡♡♡
+1 vote
May 3, 2016
anonymous
This is the most loving and resilient family I've known. Love their positive attitude always!
+1 vote
May 3, 2016
Abby
Stephanie and Mathew are amazing people that have been to hell and back, fighting for their baby girl.  They never complain and always find joy and gratitude in their lives.  They are deserving people.
+1 vote
May 3, 2016
cdbattersby 160 points
I love watching Addie grow and hearing about the different milestones Addie has had. God knew what He was doing when He blessed Addie with such loving and caring parents. Thank you mommy and daddy for sharing Addie with all of us. <3
+1 vote
May 3, 2016
anonymous
I love reading about Addie and how much she is improving every day! God is so good! I love to see the many answered prayers!!
+1 vote
May 3, 2016
anonymous
I recently began following the story of this special family. I consider this young Mom and Dad absolutely heroic. Their love for their beautiful Addie makes them strong, and they are amazing parents. Little Addie is their miracle and their joy. They care for her constantly, tirelessly, and TOGETHER.  This baby has been showered with love every minute of her life. Despite some setbacks, she has grown and improved. Addie is such a happy and very blessed little girl! Her parents cherish her. This young couple does not have an ounce of self-pity or bitterness. They just exude love, strength, gratefulness, and great faith. I admire them and wish them all good things!
+1 vote
May 3, 2016
anonymous
Wonderful and moving story! Such a strong family!
+1 vote
May 3, 2016
Shelley
Each day I look forward to hearing how Ms. Addie is feeling. She is such an amazing little girl with wonderful parents.
+1 vote
May 3, 2016
Gtunche 200 points
Addison such a fighter.  Progressing each day.
+1 vote
May 3, 2016
Sheilla G.Wallace 480 points
There is so much more to this story. I have been praying for Addie and her family for a while now. You would think just this bit of their story would knock any family out. But they are still up and fighting the good fight. They all truly are an inspiration to me. God bless them and all the families struggling to get through a regular day with a family member with extreme medical conditions. We all want what's best for our loved ones. We all deserve that.
0 votes
May 3, 2016
anonymous
Love this family. Their faith. Their baby girl.
0 votes
May 3, 2016
Tonya in NC
Thank you to the person or person who submitted this family to ellenNation. I have been following this family for some time. Sharing their story, prayers & thoughts. They are a strong family to endure all the set backs little Addie has endured but keep their faith & stay strong for each other. The family has a strong source of support & we as followers on Face Book go on line to get our Addie fix & offer what little we can to support them. We see the ups & downs of this family & feel any new exposure to their family would enable more people to see this remarkable family in their own surroundings & offer them new support. They may offer new ideas or new medical facilities that could help Addie more. New medical ideas happening every day. May offer other families with similar problems, hope in seeing Addie. Her Mom always has her dressed in the prettiest of clothes & Addie has a pretty little white dog & loves giraffes. She is very alert & loves visits by family & friends. Just believe Addie would be an inspiration to the rest of the world that has never had the pleasure of meting her. It would be a win, win experience for both parties. Would love to see ellenNation take a personal interest in this young family. You will be truly blessed by this family & their faith.
0 votes
May 3, 2016
Tanya Rogacki
Wow!!! I also glad to hear y'all caught the eye of Ellen!!!  Pink Ninja Power Punch!  The sweetest thing!!!
0 votes
May 3, 2016
anonymous
I have been following this lovely family for a long time.  They are so committed to God and their beautiful baby girl.  Anything you can do Ellen to help them out would surely be appreciatedc.
0 votes
May 4, 2016
Amber
Beautiful and STRONG family! I went to school with Mathew and admire his and his wife's strength immensely
0 votes
May 4, 2016
anonymous
I absolutely love this very special family. Stephanie (Addie's momma) has been such an encouragement in my life & I don't even know her! Watching the trials & tribulations they have been through has been so heartbreaking to see, however, Stephanie & Matthew have remained so positive & so faithful to their little girl. Their lives are fully & completely dedicated to Addie. They are dedicated to her health, her well being, her everything. These are some really great people & Ellen would be so lucky to meet them!! Please bless their lives & bring them on the show. The world would fall in love with them just as I have!
0 votes
May 4, 2016
anonymous
Addie was a nicu neighbor to my son Levi. We also stated at the Ronald mcdonald house in temple with mom and dad. Such a sweet and loving family. Love how far she has come.
0 votes
May 4, 2016
anonymous
Love following this family!!! They are love.
0 votes
May 4, 2016
Meegan Vasquez-Smith
I have been following A die mommy before she was pregnant. This sweet family has overcome so much. And have been so open about their struggles and joys. I would.love that they received some TLC.
0 votes
May 5, 2016