+17 votes
Lola's Journey
Description
In February 2015, Rob and Michaela had a beautiful daughter, Lola and enjoyed life full of laughter and play. They were getting ready to welcome their second child in March and could not be more excited about their growing family.

On March 1st 2015, just a few days shy of turning 2, Lola was diagnosed with Chordoma. And Rob and Michaela welcomed their second daughter, Lucy, days after. Treatment for Lola followed after the birth of Lucy. Family life went into overdrive, including trips back and forth to Memorial Sloan Kettering Cancer Center, long admissions to the hospital, and caring for a newborn. Since March, Lola has had a craniotomy, thoracotomy and segmentectomy (a lung resection), and she has completed 10 rounds of chemotherapy. Lola is a beautiful, strong, feisty little 2-year old who loves her Minnie Mouse, Mickey Mouse, Elsa and Anna. She touches everyone she meets with her charm and imagination, and despite her age, she will tell you what is on her mind and how she feels about you. Lola is a fighter and will continue to strive to greatness.

Following her last round of chemo, all her doctors have determined that her next step in order to make sure this tumor is gone once and for all is Proton Beam Radiation. This treatment is done at Massachusetts General Hospital in Boston, Massachusetts. Lola and her family moved to Massachusetts to ensure Lola and her little sister, Lucy, can continue to have as normal of a life as possible. Lola’s treatment started right after the New Year and will consist of radiation every day.

Lola started Proton Beam Radiation on Tuesday, January 26th, 2016. She has done well despite a little cold and feeling a little dizzy after anesthesia. She has been also been receiving physical therapy. It has been a challenge waking up at 6:15 every morning to travel into Boston and not being able to eat or drink from the time she goes to bed until radiation is done, usually around 10 AM the next morning. Overall, Lola and her family has been managing their new environment and new schedule.
1,377 views Mar 1, 2016
Lola's Journey 750 points
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Lola's Journey 750 points
The very talented Lola singing "Twinkle Twinkle Little Star"!

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1654017868166422/
+3 votes
Mar 1, 2016
Mim 10,640 points
Lola Rose a precious star who twinkles brightly****
Lola's Journey 750 points
Lola saying "What the heckles!?"  What the heckles to cancer!  But she is fighting it like a rockstar!!

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1654016508166558/
+3 votes
Mar 1, 2016
Lola's Journey 750 points
Before a lung resection, a very stressful surgery, Lola wanted to dance!  "Shake it, shake it!!"

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1656007364634139/
+3 votes
Mar 1, 2016
Becky Mandly 230 points
Lola you are such an inspiration! You remind me to live everyday to the fullest and to smile and be brave!
+3 votes
Mar 2, 2016
Lola's Journey 750 points
"I finished my game!!!' Lola loved playing golf at midnight on the meds floor of Sloan Kettering!!  This kid was a total night owl and just wanted to go on adventures at night! Even if it meant playing golf while all the other children were sleeping... Whatever works, right?

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1653927548175454/
+2 votes
Mar 1, 2016
Karen Anderson
Yay Lola, your the best!!! You are my super hero always and forever, love the singing peanut
+2 votes
Mar 2, 2016
anonymous
God bless this tiny beautiful child ! Many prayers always...
+2 votes
Mar 2, 2016
Mim 10,640 points
Precious Lola Bug, You and Lucy make our days brighter.  ~Mim
Mim 10,640 points
Sweetest little peanut with a precious little sister.  ***
anonymous
Feel better~
+2 votes
Mar 25, 2016
Mim 10,640 points
Dear Happy Lola Bug,  Happy Friday!  Enjoy and have an awesome weekend with Lucy, Mom and Dad.***  Your family is so loved.
+1 vote
Mar 12, 2016
Mim 10,640 points
Happy Day! ***
+1 vote
Mar 19, 2016
anonymous
Happy Birthday!  ***  Wishing you all that is good***
+1 vote
Mar 23, 2016
Mim 10,640 points
Lola and Lucy, You are so loved ~ Mommy and Daddy too!  Happy Day!
+1 vote
Mar 29, 2016
Mim 10,640 points
Love the photos from Easter!  A very special weekend for all**  Thank you God***
+1 vote
Mar 30, 2016
Mim 10,640 points
Some Elsa snow for you and Lucy!  ***
+1 vote
Apr 5, 2016
Mim 10,640 points
~Wishing you and Lucy the best day ever! ***
+1 vote
Apr 14, 2016
Lola's Journey 750 points
Lola is a rockstar!! She had a tough few weeks!  Radiation is DONE!!! 38 rounds in total! Following radiation, Lola had a fever and was brought to MGH.  She had an ear infection and a week later got a stomach bug.... We had a CT pet scan yesterday and I am happy to report... LOLA IS NED! NO EVIDENCE of DISEASE!!!  We are waiting on a tumor board meeting to make sure Lola has no further treatment and we just have to keep an eye on her and do scans every few months!!! TIME TO CELEBRATE!!
+1 vote
Apr 14, 2016
Mim 10,640 points
Such good news for Lola Bug and family!
anonymous
Happy Day!  Just love this face***
+1 vote
Apr 19, 2016
anonymous
Love those happy donut/Rice Krispies' smiles!
+1 vote
May 10, 2016
Mim 10,640 points
Happy sunny day! ***
0 votes
Apr 21, 2016
anonymous
A special day at the zoo!***
0 votes
Apr 25, 2016
Mim 10,640 points
To our precious Princesses we love you so much.  Happy to see a fun day with Lucy and Daisy!  Happiness is a day with family and special friends.  <3
0 votes
Apr 26, 2016
Mim 10,640 points
Happy days playing outside and at the park.  Love to see those smiles~
0 votes
May 14, 2016
Mim 10,640 points
Happy sunny, warm day Lola and Lucy!  Love, Mim***
0 votes
May 26, 2016
Mim 10,640 points
Happiness is Lola laughing and giggling with her little sister and cousins.  So fun!  Everything is better with cousins!  xoxoxo
0 votes
Jun 5, 2016
anonymous
Love the smiles!  ***
0 votes
Jun 7, 2016
anonymous
Cheers for Lola and her family!  Thanks for all the prayers and blessings they do help***
0 votes
Jun 8, 2016
anonymous
A very special Relay for Life walking with Team Super Lola Bug****  An inspiring night seeing all the teams walking.  So many touched by cancer, so many supporters.
0 votes
Jun 13, 2016
Mim 10,640 points
Wishing you and Lucy a day filled with fun.  xoxoxo
0 votes
Jun 15, 2016
anonymous
Have a sun filled awesome day!
0 votes
Jun 21, 2016
Mim 10,640 points
A beautiful Angel has arrived in heaven and her name is Ava.  Sending prayers for her family and friends .***
0 votes
Jun 22, 2016
Mim 10,640 points
Happy last day of  June***   Wishing you and Lucy a special day!
0 votes
Jun 30, 2016
Mim 10,640 points
A very special 4th of July weekend*****
0 votes
Jul 6, 2016
Mim 10,640 points
Our precious Lola Rose~  We love you to the moon and back. xoxo   Lucy too! xoxo
0 votes
Jul 8, 2016
Mim 10,640 points
There she is Precious Lola Rose***
0 votes
Jul 12, 2016
Mim 10,640 points
Blessings continue, Thank You God and everyone for your prayers***
0 votes
Jul 13, 2016
Mim 10,640 points
Precious Lola Rosie~ We love you and Lucy so much!   xoxox  (Mommy and Daddy too!)
0 votes
Aug 6, 2016
Mim 10,640 points
God Bless***
0 votes
Aug 12, 2016
Mim 10,640 points
Keeping you in our thoughts today***  Looking forward to seeing you soon riding your new tricycle.  xoxo  Lucy, Mommy and Daddy too!
0 votes
Aug 13, 2016
Mim 10,640 points
Sending Prayers and Blessings to our Lola Bug and family***  xoxo
0 votes
Aug 28, 2016
Mim 10,640 points
Happy days in Orlando, Florida***  Wonderful organizations~ Give Kids the World and Make a Wish foundation.  Limo service, Jet Blue amazing taking such good care of this precious family. Thank you so much.   Praying and hoping for all that is good for Lola Rosie Posie***  Love you to the moon and back!
0 votes
Sep 11, 2016
Mim 10,640 points
Happiness is seeing you and Lucy playing together.  You are so special to us and we love you both to the moon and back.  ****
0 votes
Oct 5, 2016
Mim 10,640 points
Fun is spending time with the people you love.  Happiness is seeing the people you love happy!  God Bless precious ones.  ****
0 votes
Oct 17, 2016
Mim 10,640 points
*** A very exciting day for Lola and Lucy!***  Happiness is two sweet sisters.    ~Enjoy
0 votes
Nov 13, 2016
Mim 10,640 points
God Bless***  So blessed to have a caring community!
0 votes
Nov 24, 2016
Mim 10,640 points
May you be blessed with a special Christmas Miracle***  God Bless~
0 votes
Dec 24, 2016
Mim 10,640 points
Precious Lola and Lucy, it looks like Elsa sent some snow for two special girls! Sending New Years Blessings***
0 votes
Jan 8
Mim 10,640 points
Hope you had a fun visit to NY!  Love your smiling faces***
0 votes
Jan 15
Mim 10,640 points
Happiness is a plate of Mickey Mouse pancakes with Mrs. Butterworths syrup.  Love your sweet smile***   Love you to the moon and back.***
0 votes
Feb 3
Mim 10,640 points
A special delivery of snow for our Lola and Lucy***  Enjoy*
0 votes
Feb 13
Mim 10,640 points
Thank you Celeste for running in the Boston Marathon for Lola and the pediatric oncology team.  It is the kindness of people such as yourself that make this world a better place.***
0 votes
Feb 18
Mim 10,640 points
So much fun with two special girls today!  ***
0 votes
Feb 24
Mim 10,640 points
Sweet Lola Rose~  ***
0 votes
Mar 11