+17 votes
Ellen Ticket Noification Lola's Journey
Description
In February 2015, Rob and Michaela had a beautiful daughter, Lola and enjoyed life full of laughter and play. They were getting ready to welcome their second child in March and could not be more excited about their growing family.

On March 1st 2015, just a few days shy of turning 2, Lola was diagnosed with Chordoma. And Rob and Michaela welcomed their second daughter, Lucy, days after. Treatment for Lola followed after the birth of Lucy. Family life went into overdrive, including trips back and forth to Memorial Sloan Kettering Cancer Center, long admissions to the hospital, and caring for a newborn. Since March, Lola has had a craniotomy, thoracotomy and segmentectomy (a lung resection), and she has completed 10 rounds of chemotherapy. Lola is a beautiful, strong, feisty little 2-year old who loves her Minnie Mouse, Mickey Mouse, Elsa and Anna. She touches everyone she meets with her charm and imagination, and despite her age, she will tell you what is on her mind and how she feels about you. Lola is a fighter and will continue to strive to greatness.

Following her last round of chemo, all her doctors have determined that her next step in order to make sure this tumor is gone once and for all is Proton Beam Radiation. This treatment is done at Massachusetts General Hospital in Boston, Massachusetts. Lola and her family moved to Massachusetts to ensure Lola and her little sister, Lucy, can continue to have as normal of a life as possible. Lola’s treatment started right after the New Year and will consist of radiation every day.

Lola started Proton Beam Radiation on Tuesday, January 26th, 2016. She has done well despite a little cold and feeling a little dizzy after anesthesia. She has been also been receiving physical therapy. It has been a challenge waking up at 6:15 every morning to travel into Boston and not being able to eat or drink from the time she goes to bed until radiation is done, usually around 10 AM the next morning. Overall, Lola and her family has been managing their new environment and new schedule.
2,108 views Mar 1, 2016
Lola's Journey 750 points
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Lola's Journey 750 points
The very talented Lola singing "Twinkle Twinkle Little Star"!

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1654017868166422/
+3 votes
Mar 1, 2016
Mim 14,500 points
Lola Rose a precious star who twinkles brightly****
Lola's Journey 750 points
Lola saying "What the heckles!?"  What the heckles to cancer!  But she is fighting it like a rockstar!!

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1654016508166558/
+3 votes
Mar 1, 2016
Lola's Journey 750 points
Before a lung resection, a very stressful surgery, Lola wanted to dance!  "Shake it, shake it!!"

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1656007364634139/
+3 votes
Mar 1, 2016
Becky Mandly 230 points
Lola you are such an inspiration! You remind me to live everyday to the fullest and to smile and be brave!
+3 votes
Mar 2, 2016
Lola's Journey 750 points
"I finished my game!!!' Lola loved playing golf at midnight on the meds floor of Sloan Kettering!!  This kid was a total night owl and just wanted to go on adventures at night! Even if it meant playing golf while all the other children were sleeping... Whatever works, right?

https://www.facebook.com/Superlolabug/videos/vb.1653463558221853/1653927548175454/
+2 votes
Mar 1, 2016
Karen Anderson
Yay Lola, your the best!!! You are my super hero always and forever, love the singing peanut
+2 votes
Mar 2, 2016
anonymous
God bless this tiny beautiful child ! Many prayers always...
+2 votes
Mar 2, 2016
Mim 14,500 points
Precious Lola Bug, You and Lucy make our days brighter.  ~Mim
Mim 14,500 points
Sweetest little peanut with a precious little sister.  ***
anonymous
Happy Birthday!  ***  Wishing you all that is good***
+2 votes
Mar 23, 2016
anonymous
Feel better~
+2 votes
Mar 25, 2016
Mim 14,500 points
Dear Happy Lola Bug,  Happy Friday!  Enjoy and have an awesome weekend with Lucy, Mom and Dad.***  Your family is so loved.
+1 vote
Mar 12, 2016
Mim 14,500 points
Happy Day! ***
+1 vote
Mar 19, 2016
Mim 14,500 points
Lola and Lucy, You are so loved ~ Mommy and Daddy too!  Happy Day!
+1 vote
Mar 29, 2016
Mim 14,500 points
Love the photos from Easter!  A very special weekend for all**  Thank you God***
+1 vote
Mar 30, 2016
Mim 14,500 points
Some Elsa snow for you and Lucy!  ***
+1 vote
Apr 5, 2016
Mim 14,500 points
~Wishing you and Lucy the best day ever! ***
+1 vote
Apr 14, 2016
Lola's Journey 750 points
Lola is a rockstar!! She had a tough few weeks!  Radiation is DONE!!! 38 rounds in total! Following radiation, Lola had a fever and was brought to MGH.  She had an ear infection and a week later got a stomach bug.... We had a CT pet scan yesterday and I am happy to report... LOLA IS NED! NO EVIDENCE of DISEASE!!!  We are waiting on a tumor board meeting to make sure Lola has no further treatment and we just have to keep an eye on her and do scans every few months!!! TIME TO CELEBRATE!!
+1 vote
Apr 14, 2016
Mim 14,500 points
Such good news for Lola Bug and family!
anonymous
Happy Day!  Just love this face***
+1 vote
Apr 19, 2016
anonymous
A special day at the zoo!***
+1 vote
Apr 25, 2016
anonymous
Love those happy donut/Rice Krispies' smiles!
+1 vote
May 10, 2016
anonymous
Love the smiles!  ***
+1 vote
Jun 7, 2016
anonymous
Cheers for Lola and her family!  Thanks for all the prayers and blessings they do help***
+1 vote
Jun 8, 2016
anonymous
A very special Relay for Life walking with Team Super Lola Bug****  An inspiring night seeing all the teams walking.  So many touched by cancer, so many supporters.
+1 vote
Jun 13, 2016
anonymous
Have a sun filled awesome day!
+1 vote
Jun 21, 2016
Mim 14,500 points
Happy sunny day! ***
0 votes
Apr 21, 2016
Mim 14,500 points
To our precious Princesses we love you so much.  Happy to see a fun day with Lucy and Daisy!  Happiness is a day with family and special friends.  <3
0 votes
Apr 26, 2016
Mim 14,500 points
Happy days playing outside and at the park.  Love to see those smiles~
0 votes
May 14, 2016
Mim 14,500 points
Happy sunny, warm day Lola and Lucy!  Love, Mim***
0 votes
May 26, 2016
Mim 14,500 points
Happiness is Lola laughing and giggling with her little sister and cousins.  So fun!  Everything is better with cousins!  xoxoxo
0 votes
Jun 5, 2016
Mim 14,500 points
Wishing you and Lucy a day filled with fun.  xoxoxo
0 votes
Jun 15, 2016
Mim 14,500 points
A beautiful Angel has arrived in heaven and her name is Ava.  Sending prayers for her family and friends .***
0 votes
Jun 22, 2016
Mim 14,500 points
Happy last day of  June***   Wishing you and Lucy a special day!
0 votes
Jun 30, 2016
Mim 14,500 points
A very special 4th of July weekend*****
0 votes
Jul 6, 2016
Mim 14,500 points
Our precious Lola Rose~  We love you to the moon and back. xoxo   Lucy too! xoxo
0 votes
Jul 8, 2016
Mim 14,500 points
There she is Precious Lola Rose***
0 votes
Jul 12, 2016
Mim 14,500 points
Blessings continue, Thank You God and everyone for your prayers***
0 votes
Jul 13, 2016
Mim 14,500 points
Precious Lola Rosie~ We love you and Lucy so much!   xoxox  (Mommy and Daddy too!)
0 votes
Aug 6, 2016
Mim 14,500 points
God Bless***
0 votes
Aug 12, 2016
Mim 14,500 points
Keeping you in our thoughts today***  Looking forward to seeing you soon riding your new tricycle.  xoxo  Lucy, Mommy and Daddy too!
0 votes
Aug 13, 2016
Mim 14,500 points
Sending Prayers and Blessings to our Lola Bug and family***  xoxo
0 votes
Aug 28, 2016
Mim 14,500 points
Happy days in Orlando, Florida***  Wonderful organizations~ Give Kids the World and Make a Wish foundation.  Limo service, Jet Blue amazing taking such good care of this precious family. Thank you so much.   Praying and hoping for all that is good for Lola Rosie Posie***  Love you to the moon and back!
0 votes
Sep 11, 2016
Mim 14,500 points
Happiness is seeing you and Lucy playing together.  You are so special to us and we love you both to the moon and back.  ****
0 votes
Oct 5, 2016
Mim 14,500 points
Fun is spending time with the people you love.  Happiness is seeing the people you love happy!  God Bless precious ones.  ****
0 votes
Oct 17, 2016
Mim 14,500 points
*** A very exciting day for Lola and Lucy!***  Happiness is two sweet sisters.    ~Enjoy
0 votes
Nov 13, 2016
Mim 14,500 points
God Bless***  So blessed to have a caring community!
0 votes
Nov 24, 2016
Mim 14,500 points
May you be blessed with a special Christmas Miracle***  God Bless~
0 votes
Dec 24, 2016
Mim 14,500 points
Precious Lola and Lucy, it looks like Elsa sent some snow for two special girls! Sending New Years Blessings***
0 votes
Jan 8, 2017
Mim 14,500 points
Hope you had a fun visit to NY!  Love your smiling faces***
0 votes
Jan 15, 2017
Mim 14,500 points
Happiness is a plate of Mickey Mouse pancakes with Mrs. Butterworths syrup.  Love your sweet smile***   Love you to the moon and back.***
0 votes
Feb 3, 2017
Mim 14,500 points
A special delivery of snow for our Lola and Lucy***  Enjoy*
0 votes
Feb 13, 2017
Mim 14,500 points
Thank you Celeste for running in the Boston Marathon for Lola and the pediatric oncology team.  It is the kindness of people such as yourself that make this world a better place.***
0 votes
Feb 18, 2017
Mim 14,500 points
So much fun with two special girls today!  ***
0 votes
Feb 24, 2017
Mim 14,500 points
Sweet Lola Rose~  ***
0 votes
Mar 11, 2017
Mim 14,500 points
***Sweet Lola Rose and Lucy Bell, Wishing you a day of fun.  Love you to the moon and back!***
0 votes
Apr 10, 2017
Mim 14,500 points
Dear Sweet Lola and Lucy~  What an exciting weekend, visiting with The Daughters of Mary Mother of Healing, Easter and then Boston Marathon Monday seeing Celeste  at mile 20 just before Heart Break Hill and spending time with your cousins and special friends...  Such memorable and special days spent with caring people who love you.   Happy Memories***  xoxo
0 votes
Apr 18, 2017
Mim 14,500 points
Happy memories from Disney World***
0 votes
May 6, 2017
Mim 14,500 points
Sweet Lola~ a special week for you starting pre-school!  Two terrific days***
Prayers and blessings for you, Lucy, Mommy and Daddy.
0 votes
May 18, 2017
Mim 14,500 points
Sweet Lola and Lucy, Precious ones.  Love your sweet little faces.  ~
0 votes
Jul 25, 2017
Mim 14,500 points
A beautiful sunny day~  Wishes for a good day for Lola, Lucy, and their parents.  Blessings to all of you***
0 votes
Jul 31, 2017
Mim 14,500 points
Dear Precious Lola and Lucy~ It was Pink Flamingo Friday last week!  What a special celebration created by a wonderful auntie.  Who knew there would be a yummy turkey dinner baked by your Papa Bear?  So, so good!  What a wonderful Pink Flamingo Party***  Yesterday you had another memorable day at Fenway Park with your family.  God Bless the family of Erica Kate Leafquist  who fought her acute lymphoblastic leukemia fiercely like a "Warrior Princess"  She is gone too soon but will live on in the hearts of her family and all who's lives she touched.  We enjoyed her artwork and the dedication to her in the Premiere Pavilion Suite B 6.  Thank you for a memorable day with sweet Lola and Lucy as well as their parents.  Go Red Sox***  An awesome game!  Thank you Dana Farber and the anonymous person who donated the tickets for Lola and her family.  Another precious memory for the family.  God Bless You and the family that shared the event with us.  Happy Monday! ***
0 votes
Aug 7, 2017
Mim 14,500 points
~Today you have your 13th radiation treatment for the tumor on your right hip.  To all who supported you and your family Thank you***  Sending Blessings to Lola and her family.  Praying for healing through the intercession of Sister Lucia, one of the children of Fatima.  God Bless***
0 votes
Aug 9, 2017
Mim 14,500 points
~Wishing you a day filled with smiles and sunshine. ***
0 votes
Aug 10, 2017
Mim 14,500 points
Fairy tea parties are the best***  Wishing you and Lucy  a day full of happiness~
0 votes
Aug 28, 2017
Mim 14,500 points
New shoes, new outfits, new friends.  Happy school days Lola!  ***
0 votes
Sep 3, 2017
Mim 14,500 points
Sending butterfly wishes on this sunny Monday***
0 votes
Sep 11, 2017
Mim 14,500 points
Happy rainy first day of Autumn***  The Topsfield Fair is not so far away!  Remember to eat some cotton candy when you visit there in October...  So many fun things to do and see  :)
0 votes
Sep 22, 2017
Mim 14,500 points
Happiness is seeing how much you love school!  ***
0 votes
Sep 27, 2017
Mim 14,500 points
So grateful for the positive results from yesterday's MRI.  Saint Therese de Lisieux and Sister Lucia thank you for your intercession for Lola.  ~Amen ***
0 votes
Sep 30, 2017
Mim 14,500 points
Blessings from above~
0 votes
Sep 30, 2017
Mim 14,500 points
Dandelion wishes and butterfly kisses for two sweet girls.***
0 votes
Oct 12, 2017
Mim 14,500 points
What a special day filled with family and friends.  So many people care about you and your family.  Happiness is a day in your backyard seeing all the happy children run, play and dance.  A day to remember, Saturday, October 14th.  God Bless***
0 votes
Oct 21, 2017
Mim 14,500 points
*** Our sweet and precious Lola Bug and Lucy Bella.  What a great day with author Dan, "Finding Brooklyn," and Madison as well as your classmates and cousins.  A fun filled day with games and yummy food.  Thank you to Ruggieri's  in Middleton for the delicious pizza, chicken fingers and salad.  A very generous donation.  Also to Madison's friend for the AWESOME cupcakes.  For all the goodies and fun games and activities...so much fun.  For all the donation Thank You!  As Lola continues her journey it is the kindness of family, friends and friends we have not met that support her and her family.  Prayers and Blessings to you all***  Your Prayers for Lola and her family are a tremendous support.~  God Bless
0 votes
Oct 29, 2017
Mim 14,500 points
~May your Monday be Maaaarvelous!
0 votes
Oct 30, 2017
Mim 14,500 points
Happy Halloween!  To a sweet little bunny and sweet little pirate!
0 votes
Nov 1, 2017
Mim 14,500 points
Wishing you and Lucy a wonderfilled Wednesday! ***
0 votes
Nov 1, 2017
Mim 14,500 points
~Wishing you a Thrilling Thursday filled with Magical Surprises for you and Lucy!  Love you to the moon and back.  ***  Wishing on those stars***
0 votes
Nov 2, 2017
Mim 14,500 points
*** Love our sweet girls.
0 votes
Nov 8, 2017
Mim 14,500 points
Thinking of our precious Lola Rose***
0 votes
Nov 16, 2017
Mim 14,500 points
Sending Thanksgiving Blessings and prayers~  God Bless you and your family***
0 votes
Nov 22, 2017
Mim 14,500 points
Love you and Lucy more than all the stars in the sky and the fish in the sea.  That is how much love there is to you from me. *****
0 votes
Nov 27, 2017
Mim 14,500 points
~Love and Prayers always.
0 votes
Dec 1, 2017
Mim 14,500 points
Sending special prayers for you today~  Blessings for you and your family***  Please pray for our Lola Rose and her family.  God is good***
0 votes
Dec 11, 2017
Mim 14,500 points
I love when Elsa sends you and Lucy snow ***
0 votes
Dec 12, 2017
Mim 14,500 points
A beautiful outpouring of support for Lola***  For all who participated, Thank You!  The world is filled with good and kind people.  Family, Friends, Community and those who are not known to us, wishing you Blessings.
0 votes
Dec 20, 2017
Mim 14,500 points
Sugar cookies, Gingerbread Houses, presents under the tree.  Laughter in the home spent with cousins and family.  For our special Christmas gift Thank You God***
0 votes
Dec 28, 2017
Mim 14,500 points
Sending New Year's Blessings***  God Bless~
0 votes
Jan 3
Mim 14,500 points
A little better each day~  Thank you God***
0 votes
Jan 5
Mim 14,500 points
Each day is a gift filled with Blessings***  Appreciating the gift of you and your family~  God Bless ***
0 votes
Jan 7
Mim 14,500 points
Wishing you days of yummy pancakes, giggles with Lucy and fun with cousins and friends. ***
0 votes
Jan 14
Mim 14,500 points
~Painting snow with classmates***  What a fun idea!  I see "L," for Lola, Lucy and Love...<3
0 votes
Jan 16
Mim 14,500 points
Prayers and wishes, butterfly kisses***
0 votes
Jan 21
Mim 14,500 points
Thank you heavenly Father for the gift of today***
0 votes
Jan 22
Mim 14,500 points
~Happiness is spending time with those you love and who love you.  Wishing you happiness always***
0 votes
Jan 24
Mim 14,500 points
Praying each day that you will continue to grow in strength and health.  God Bless You, your family and all those that pray for you.  ***
0 votes
Jan 29
Mim 14,500 points
Love your precious smile~  God Bless***
0 votes
Jan 31
Mim 14,500 points
Sending love and prayers to you and your family***
0 votes
Feb 3
Mim 14,500 points
Our Precious Lola Rose ~Always in our hearts.  ***  You are our Angel.
0 votes
Feb 9
Mim 14,500 points
*** Our sweet Angel Lola Rose***
0 votes
Feb 16
Mim 14,500 points
You will be loved always***
0 votes
Feb 20
Mim 14,500 points
So loved, so missed...
0 votes
Feb 26
Mim 14,500 points
***Happy 5th Birthday Precious Lola Rose***  We love you to the moon and back!  Birthday Blessings, you are always in our hearts.  xoxoxoxo
0 votes
Mar 22
Mim 14,500 points
~Love for you and your family always...
0 votes
Mar 23
Mim 14,500 points
Your time on this Earth was too short.  We will always carry you in our hearts...  God Bless***
0 votes
Mar 27
Mim 14,500 points
Our Precious Angel Lola Rose***  You will always be in our hearts...
0 votes
Apr 4
Mim 14,500 points
***Two months ago today you walked across the bridge to heaven.  May your days be filled with sunshine and gentle warm rains, rainbows and beautiful fields of flowers.  I am hoping you are playing and giggling with the other Angel Children.  Love you to the moon and back~  Always in our hearts. xoxoxo
0 votes
Apr 8
Mim 14,500 points
***So loved, so missed. xoxo***
0 votes
Apr 17
Mim 14,500 points
~Last year at this time you were in Disney World with your family.  Going here, there and everywhere looking for character autographs. Enjoying the parks.  Loving your family. You playing the African drums at the restaurant.   On this day last year you and Lucy left a very special birthday message for your auntie.  We still have the recording on our machine.  So Precious, so sweet.  Remembering that special moment...  Sending you hugs and kisses.   ***
0 votes
Apr 25
Mim 14,500 points
Dear Sweet One, Not a day goes by that you are not missed.  The days of "pink flamingo milk," a.k.a  strawberry nestle quick powder in your milk,  fudge, snow angel toast, and McDonald's chicken nuggets and french fries as well as Mac and Cheese are sweet memories.
 It is now May, the month of Mary.  You loved our Blessed Mother.  Father Michael said that when you arrived in heaven  Mary would be there to wrap you in her loving arms.  We Love you always~ xoxoxo  You are Our Precious Lola Rose. ***
0 votes
May 2
Mim 14,500 points
~Remembering those precious days we spent with you...they were gift days from God.  So loved.  ***
0 votes
May 4
Mim 14,500 points
So grateful you were a part of our lives...you always will be our Precious Lola Rosie Posy.  Blessing to Mommy, Daddy, Lucy Bella and everyone who loves and misses you.
0 votes
May 9
Mim 14,500 points
It was Mother's Day this past Sunday.  Thoughts were with you on this day.  We will never forget our Sweet Rosie Posy on these days and the special memories of you and Lucy playing together in the backyard.  ***Enjoying Disney World and chicken nuggets.  God's Blessings to you and your family.  We love you to the moon and back.***
0 votes
May 16
Mim 14,500 points
Precious one, five months ago yesterday you took the bridge to heaven.  Love you***  May you know you are missed and thought of always.  xoxo    Last night there was a beautiful pink sky***
0 votes
Jul 9
Mim 14,500 points
***Love you to the moon and back***
0 votes
Aug 11
Mim 14,500 points
***Close in thought always in our hearts...
0 votes
Aug 25