+136 votes
Super Jude
Description
Help Super Jude fight RCDP

Dear RCDP,





I am writing this to you as I lay upstairs with a mask on, quarantined away from my baby because I have simple cold. A simple cold that because of you, could be as serious as taking a life from a RCDP child.




From the first time I heard your name, I knew you weren’t good. I knew you were a bad thing. From day one I started my fight with you and I haven’t stopped and I certainly won’t.


You are an evil disease that likes to take away. You take big things and small things and I am tired of you getting away with it.


You take abilities from innocent loving children who are more than deserving of the things you viciously rip away.


I was harshly introduced to you on a day that should have been one of the best. I met you the day after my sweet baby was born and laying perfectly in my arms. You viciously came into my life and started ripping things away from us and from that day, I hated you.


It’s because of you that my Jude is going on two and yet he still can’t walk and play. It’s your fault that even though he looks at me and tries while his eyes are telling me he’s longing to, he can’t talk to me. Everyday when his unbearable GI pain consumes him and takes his breath away and I have to sit there holding him while he soaks me in tears and screams for help that I can’t give, I am cursing you. Every needle that pierces his skin, I hate you. Every therapy stretch that causes his pain, I hate you. Every surgery that he goes under, I hate you. Every MRI that tells us bad things, I hate you. Every X-Ray that reveals his deformities and shows us his discomfort, I hate you. Every mile we desperately travel to find help, I hate you. Every spinal tap, I hate you. Every seizure, I hate you. Every little tremor in his feet, I hate you. Every time I have to splint his contracted body and cause him pain, I hate you. Every failed swallow study that confirms he can’t eat normally, I hate you. Every aspiration, I hate you. Every feeding tube change, I hate you. Every time I click on his oxygen, I hate you. Every alarm of his monitor, I hate you. Every EEG, I hate you. Every sleep study, I hate you. Every long night spent crying by his hospital bedside, I hate you.


Somedays I fall in the trap, the trap of being bitter and mad. I just want to scream. This battle you have thrown upon us is hard and it’s devastating at times.


And then I look at Jude, the one who should be most effected by this and do you know what I see? I see love, joy, strength, peace, hope, victory and I see my Heavenly Father upon him. People often tell me how much of a warrior mom I am and that I fight so hard. But to be totally honest, he’s the toughest one.



Everyday I watch him push through pain and find victories. He’s a fighter and while it’s such an incredible thing to witness his bravery and strength, as a mama I don’t want him to have to fight such a harsh battle anymore. Jude is known as “The Brave Little Warrior” and he certainly lives up to that name. But I want my little warrior to be free from this.


There is now HOPE! In a clinical trial that is starting around the beginning of 2016. Researchers are in the process of testing a drug that researchers and doctors think could be a cure for a lot of their issues. Obviously it would not change their size but they do think it would change their lifespan and quality of life.


This is why I fight so hard. This is why I blast social media and blow up webpages trying to raise awareness. This is what we are fighting.


Even if you have nothing to donate towards the trial, you can still fight this with us. You can share about our Rhizo kids and you can stand in prayer with us! Please join our fight!

www.judestribe.com
http://www.rhizokids.com

#HOPEforRCDP
#hopeiseverything
#judestribe
#bravelittlewarrior
4,501 views Jan 10, 2016
Darla Collins 2,480 points

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anonymous
I vote for Super Jude!!
+9 votes
Jan 10, 2016
anonymous
I love baby Jude! He is such an amazing boy, and his momma is so inspirational and positive. They are truly a great family and deserve to be on Ellen! ♡
+8 votes
Jan 10, 2016
Terrygator 300 points
Please ask Jude to be on Ellen!
+7 votes
Jan 10, 2016
anonymous
Please bring sweet Jude on the Ellen show
+7 votes
Jan 10, 2016
Sarahdawntaylor 260 points
Jude is so adorable. I vote for Jude.
+6 votes
Jan 10, 2016
Clara
He is brave and a little fighter!! Let him and his Mother and Father tell their story and the Love and Hope they have for Jude but the children that has this conditions!!! Please let them be on Ellen!!! Thank You and God Bless!!
+5 votes
Jan 10, 2016
anonymous
I vote for Jude to be on Ellen, he will change your life :)
+5 votes
Jan 10, 2016
anonymous
Please ask sweet Super Jude to visit Ellen!
+5 votes
Jan 10, 2016
smac1966 1,190 points
Please vote for Jude to be on the Ellen Degeneres show. This sweet child's story needs to be shared to bring awareness to all viewers. I vote for Jude! Super Jude.
+5 votes
Jan 10, 2016
anonymous
I vote for Jude! He is such a sweet babe!
+5 votes
Jan 10, 2016
ChristyRodia 250 points
Praying Baby Jude gets on Ellen!!!
+5 votes
Jan 10, 2016
anonymous
I vote for baby Jude
+5 votes
Jan 10, 2016
anonymous
I vote for Jude
+4 votes
Jan 10, 2016
rlknoll 210 points
I vote for Jude!! Please bring him on the show!!
+3 votes
Jan 10, 2016
Laura
We vote for baby Jude!!
+3 votes
Jan 10, 2016
anonymous
Voting for Jude Peters who deserves to be on the Ellen DeGeneres show!!
+3 votes
Jan 10, 2016
Saranp43@aol.com
I vote for Jude. He's brave, a fighter. The world needs to know what RCDP is and Jude should be on Ellen's show.
+3 votes
Jan 10, 2016
Saranp43@aol.com
I vote for Jude. He's brave, a fighter. The world needs to know what RCDP is and Jude should be on Ellen's show!
+3 votes
Jan 10, 2016
anonymous
Would love to see baby Jude on Ellen. He is a warrior, fighter. Help his mom get the word out about this disease. Thanks
+3 votes
Jan 10, 2016
anonymous
Ellen, invite Jude to be on your show!
+3 votes
Jan 10, 2016
anonymous
Please have sweet baby Jude on your show Ellen!
+3 votes
Jan 10, 2016
Lolly Hanshaw
Ellen, having Jude on your show would be an amazing blessing. Please select Jude you won't be disappointed.
+3 votes
Jan 10, 2016
anonymous
Baby Jude!!!
+3 votes
Jan 10, 2016
anonymous
I vote super Jude..he is so adorable
+3 votes
Jan 10, 2016
Julie Stoligrosz 210 points
Go jude! Go jude! Go Jude!  He is such a strong fighter and inspiration  to thousands!!
+3 votes
Jan 10, 2016
anonymous
Send SUPER JUDE to Ellen
+3 votes
Jan 10, 2016
Purycountygirl 240 points
Awareness needs to be had...a cure is in sight.
+3 votes
Jan 10, 2016
Jill
Please ask sweet Jude to be on the Ellen show!  I think he is an amazing toddler and I think his parents are amazing for sharing his story.  Please consider Jude!  He is Super Cute to me!  Jill from NC
+3 votes
Jan 10, 2016
Cindy Ivins 210 points
Please Ellen bring Jude onto your show. He is an inspiration and works so hard to do things we all take for granted. You will fall in love with this brave little warrior! Help get his message out!
+3 votes
Jan 10, 2016
Sheila
I vote Jude!!!
+3 votes
Jan 10, 2016
Cristal Moreno 330 points
Jude on Ellen!!!
+3 votes
Jan 10, 2016
Cynthia
I vote for Super Jude on Ellen
+3 votes
Jan 10, 2016
Anita
Please welcome Jude to the Ellen Show. He fights his battles every day & his story should be told. Jude has thousands of us following him & his progress, he is our child too.
Thrayron Bentley Mor 5,220 points
I agree!!! Jude needs a voice!!! Please put him on the Ellen Show!!
ReneeW860 240 points
Please put Jude and his family on Ellen!! More people need to be made aware of this!! This is one amazing family!
+3 votes
Jan 10, 2016
anonymous
Vote for Jude on Ellen!
+3 votes
Jan 10, 2016
Patty Miller
Sweet baby Jude.  I vote for you all the way.
Patty from Ohio loves you so much.
+3 votes
Jan 10, 2016
Love Prince Jude 190 points
Ellen...I haven't had the privileged of meeting "My Prince Jude," and his amazing family, and more than likely, never will. But that's OK...with all the interaction, and involvement I've had the privilege of being involved in, I feel like I know them already. Jude is simply amazing, and he holds a very special place in my heart. I would LOVE, to see Jude and his amazing family on your show. He has my vote 100%...GO PRINCE JUDE!!
+2 votes
Jan 10, 2016
anonymous
please have Jude on Ellen
+2 votes
Jan 10, 2016
Thrayron Bentley Mor 5,220 points
Treatment and cure may be coming. Please Ellen, you can be the first to bring this to the attention of the nation!!!
+2 votes
Jan 10, 2016
Marcus
Please tell Jude's story in your show. It fits so many of the things you care about.
+2 votes
Jan 10, 2016
Sherri Robertson 540 points
Dear Ellen, Please have this precious boy Jude on your show!!!
+1 vote
Jan 10, 2016
Susan cassel 180 points
Please help us help Baby Jude!
+1 vote
Jan 10, 2016
Susan cassel 180 points
I voted for Jude just a bit ago. I hope you can see fit to have Jude on your show Ellen. He makes me smile every day and I know you would fall in love with him as we have.
Steffanie
We vote for Jude, he is amazing and so worthy of being spot-lighted.
+1 vote
Jan 10, 2016
anonymous
I love baby Jude! Let's get him on the show :)
+1 vote
Jan 10, 2016
Sheliajanepulley 580 points
I vote for Jude he amazing little boy,
0 votes
Jan 10, 2016
Nadine Forney
Not only does Super Jude deserve this but his young parents do also.  They never give up and strive to get him the best possible life he can have.
0 votes
Jan 11, 2016
babyjudevotes 160 points
Done!
0 votes
Jan 11, 2016
anonymous
Please invite Super Jude and his family to your show. He will steal your heart with his adorableness!
0 votes
Jan 11, 2016
anonymous
Ellen please have Jude and his family on your show to raise awareness.  They are amazing!
0 votes
Jan 11, 2016
Carla H. Lokey
I vote for JUDE, BraveLittleWarrior <3
0 votes
Jan 11, 2016
anonymous
I vote Super Jude!
0 votes
Jan 11, 2016
doni creswell 140 points
I vote for baby Jude!  He is such a warrior and has been an inspiration to so many people that have never met him.  He deserves to be happy and pain free.  Please help him out Ellen. <3
0 votes
Jan 11, 2016
Luvada McDaniel McNe 140 points
Please feature Jude on your show.
0 votes
Jan 13, 2016
Dana Bradley
I vote for #Judestribe. He is a fighter and a warrior too!http://ellennation.com/27049/super-jude
0 votes
Jan 19, 2016