Nolan's CHD was not diagnosed until he was 7 months old. I had multiple ultrasounds (Even several level 2 ultrasounds) and an amniocentesis. When Nolan was born his Apgar scores were 9 and 9. He was 6 lbs. and 19 inches long. He went to the normal baby nursery after delivery. After a few days we were sent home. It was pretty normal.
We noticed feeding issues right away. I wanted to breast feed him and he was unable to nurse (or bottle feed) for more than a minute or two before falling asleep. I thought this was just a normal sleepy newborn, and his pediatrician wasn't concerned so I decided to pump and bottle feed him so he could get a faster flow, thus giving him more nutrition. After about 3 months, he started nursing more, but he could only eat for 4 or 5 mins at a time and then he would get sweaty and fall asleep. The back of his neck was broken out from the sweat and being in my arms. We talked to his pediatrician about it, but he said it was normal baby acne and not to worry. He had a terrible case of reflux, it seemed like I always smelled like baby vomit. Nolan was getting several baths a day because of it. He was prescribed medication for reflux. It didn't seem to help. I watched YouTube videos to show me how to give him baby massages to help reflux, and it didn't make a difference. I also was talking him to a chiropractor twice a week. This wasn't helping either. His arms were always tense and his fists were balled up against his chest. It concerned us, but again, his pediatrician told us that he wasn't worried about it. We started to think that we were just crazy first time parents who had no idea what we were doing, or what was normal with babies and what wasn't.
Say hi to Nolan and read the complete story on
Welcome to ellenNation, The Nation of Ellen DeGeneres, where you can showcase your submissions, add videos, images and receive opinions from other ellen fans & the members of the community. - ellenNation