+151 votes
We Heart Nolan
Description
Nolan's Story
Nolan's CHD was not diagnosed until he was 7 months old. I had multiple ultrasounds (Even several level 2 ultrasounds) and an amniocentesis. When Nolan was born his Apgar scores were 9 and 9. He was 6 lbs. and 19 inches long. He went to the normal baby nursery after delivery. After a few days we were sent home. It was pretty normal.

We noticed feeding issues right away. I wanted to breast feed him and he was unable to nurse (or bottle feed) for more than a minute or two before falling asleep. I thought this was just a normal sleepy newborn, and his pediatrician wasn't concerned so I decided to pump and bottle feed him so he could get a faster flow, thus giving him more nutrition. After about 3 months, he started nursing more, but he could only eat for 4 or 5 mins at a time and then he would get sweaty and fall asleep. The back of his neck was broken out from the sweat and being in my arms. We talked to his pediatrician about it, but he said it was normal baby acne and not to worry. He had a terrible case of reflux, it seemed like I always smelled like baby vomit. Nolan was getting several baths a day because of it. He was prescribed medication for reflux. It didn't seem to help. I watched YouTube videos to show me how to give him baby massages to help reflux, and it didn't make a difference. I also was talking him to a chiropractor twice a week. This wasn't helping either. His arms were always tense and his fists were balled up against his chest. It concerned us, but again, his pediatrician told us that he wasn't worried about it. We started to think that we were just crazy first time parents who had no idea what we were doing, or what was normal with babies and what wasn't.

Say hi to Nolan and read the complete story on
https://www.facebook.com/notes/we-heart-nolan/nolans-story/553401544687645
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4,684 views Jan 8, 2016
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Mandy Maki 320 points
Nolan along with his family are always in my prayers. He is the same age as my son and I have been following his story from before he got his new heart. This brave little mans smile could light up any room! I pray that Nolan continues to have days filled with health and laughter.
+9 votes
Jan 8, 2016
anonymous
This family is amazing! Nolan and my son are the same age and I've been following Nolan's journey for a long time, through it all his parents have shown so much grace and strength! They are truly inspiring!!
+8 votes
Jan 8, 2016
Boys mama 270 points
This boy and his family have been through things that no family should ever have to go through!  It's truly amazing how far he has come!
+6 votes
Jan 8, 2016
Gaymarie Sparrer
This is one brave little boy an he has no idea how brave he is.  I am blesse to have him as my great grandson an have fun playing with him
+6 votes
Jan 8, 2016
Lisajane34 270 points
Nolan, as well as his amazing mother and father, is such a strong, wonderful, child! I love following his journey. While it isn't always the best news, he always fights through it. I don't know this family but I love them!
+6 votes
Jan 8, 2016
anonymous
Go Nolan!
+6 votes
Jan 8, 2016
anonymous
We met Nolan's Grandmother while we were volunteering making dinner at the Ronald McDonald House in Pittsburgh during his surgery.  We have been following his life on his Facebook page ever since. We continually pray for this brave little boy and are amazed at what he has gone through and overcome!!  May god bless Nolan and may he continue to inspire us all and grow stronger every day!!
+6 votes
Jan 8, 2016
Nolan's Grandma Jen 510 points
HI- are you the family we met the day after Christmas?  We cooked a Christmas dinner for Nolan's parents.  Thanks for still following and caring about Nolan.
Liz
I had the pleasure of being in the same birth club as Nolan's mom and have followed his story from day 1. This kid has overcome so many setbacks, always with a smile and the ability to touch everyone who hears about his journey. His parents are amazing and there are so many cheering on Nolan. Xoxo
+6 votes
Jan 8, 2016
firecracker12556 240 points
i have followed Nolan's story for over a year now on facebook.  this little man in training, through all his painful trials and hurts, keeps smiling and is an inspiration to all of us.  the eyes of the innocent and the heart of an angel.  i dont know how to vote for this young man, but if my comment counts, let this be my vote.  blessings to Nolan and his parents and all the family and friends that support him.  may you be surrounded in love and light always.
+5 votes
Jan 8, 2016
Sherry Cooper 250 points
Don't forget to vote! You need to register and click the 'up' button above Nolan's picture above. I've been following him for a long time and praying for Nolan and his family. What a precious boy and sweet family! Sending love!
+5 votes
Jan 8, 2016
anonymous
My whole family is so proud of nolan and how far he's come. He's such a strong boy, and without even stronger parents, he wouldn't be where he is today.
+5 votes
Jan 8, 2016
anonymous
My family became aware of Nolan because we are friends with Nolan's uncle.  When Nolan was brought to Pittsburgh, we went with his uncle to visit Nolan's mother.  Laura was so young (25 at the time) but she showed a strength that was far beyond her years.   His story is truly an amazing one.  He has been through so many traumatic situations and hospital stays but he never loses his beautiful smile.  His parents are 2 of the best parents I have ever seen.  As Nolan overcomes obstacle after obstacle, they are right there making his life wonderful and happy.
+5 votes
Jan 8, 2016
anonymous
I've been following this little guy on Facebook since he was a baby. He stole my heart. He always has a smile. His mother has been amazing through out his journey. Love!❤️
+5 votes
Jan 8, 2016
Lynn
This family is amazing. I love Nolan and his mom Laura and dad Rob. They are true friends who have been amazing friends to me even during their bumpy parts. I appreciate the love they give me. Nolan is quite charming and full of spirit and ambition. Their life isn't "easy" but they don't whine, they embrace their new life and schedules. I hope I can achieve being half the mom that Laura is.
+5 votes
Jan 8, 2016
anonymous
I love hearing updates on Nolan and his progress post-transplant. His smile and his bravery, as well as his family and their positive outlook on life is amazing!
+4 votes
Jan 8, 2016
Centsc5
Little Nolan and his family are an inspiration to all who know his story! This little guy has been through so much in his short life and bounces back with a smile. We love Nolan!
anonymous
Nolan is such a sweet child! He has given so many people the strength, faith, determination and will to fight on through his tenacity. This little boy has smiled through some of the most horrific things. He is a powerhouse and a force to be reckoned with. I don't think there will be much that can stop this little one. Maybe a video of Thomas the Train...for a little while! I love this kid. We <3 Nolan!!!
+4 votes
Jan 8, 2016
anonymous
We love this brave and happy spirited boy. His parents are amazing and lets us as a community be a part of his circle of love!
+4 votes
Jan 8, 2016
Stephanie Payne Connelly
I have followed Nolans story before he had his surgery. I love that face and smile. I cried and cheered with Nolan and his parents. I hope he wins. He deserves it!
+4 votes
Jan 8, 2016
anonymous
I've been following Nolan's progress and praying for him for a long time now and so happy to hear of his current good health.  He's so positive and has such wonderful, loving parents.  Bless you all and keep up the great work, Nolan!  Love your sweet innocent sparkle!  How do we vote?  He's so deserving!
+4 votes
Jan 8, 2016
Brooke Carlson 240 points
Nolan holds a special place in my heart.  His parents and grandparents are the strongest people I have ever had the pleasure of knowing.  They are always in my thoughts and prayers.  Nolan continues to amaze me every day.
+4 votes
Jan 8, 2016
Smorgan 230 points
This baby and his parents are so amazing, so strong.  No matter how sick he gets he always has a smile on his precious face.  He is just the happiest little boy, and that happiest is formed by loving parents.  I pray for him daily and his accomplishments have been tremendous.  Nolan's smile brings happiness to so many that he doesn't even know.  We are so proud to be a part of his life, even if from afar.  Praying for Nolan daily.
+4 votes
Jan 8, 2016
anonymous
I  was lucky enough to pull together a small fundraiser for Nolan's family just over a year ago. I have grown to LOVE this family and have watched him grow. Nolan is one amazing little man, and so are his parents! They NEVER would leave his side in the hospital and still to this day don't, if they need to be somewhere they make sure and find someone to be by his side! He is never alone and they are amazing parents!!! I absolutely LOVE this family and love watching them grow! if there were ever anyone i could say deserves to be on Ellen it is Laura and Rob! (and if i ever were to win an large lump of $$ they would be top of my list to share it with!!!!!)
+4 votes
Jan 8, 2016
Caseystokes24 300 points
This little boy deserve the world!
+3 votes
Jan 8, 2016
Caroline24 210 points
Prayers to Nolan! Been following his story for awhile now! He is a sweet little boy with wonderful parents! Go Nolan!!!!
+3 votes
Jan 8, 2016
anonymous
amazing family
+3 votes
Jan 8, 2016
anonymous
Amazing little boy always smiling with an amazing family.
+3 votes
Jan 8, 2016
alovesv 200 points
You're awesome Nolan!!  ♡♡
+3 votes
Jan 8, 2016
anonymous
What a sweet boy and inspiring story!
+3 votes
Jan 8, 2016
anonymous
Follow the link to read the rest of Nolan's story.   The intro here is just the start of an incredible journey.
+3 votes
Jan 8, 2016
Valerie Marie 210 points
I took care of Nolan when he was at The children's institute. Nolan inspired me to do an educational project on CCHD and increasing CCHD awareness. Their family is so inspiring and he is always in my prayers.
+3 votes
Jan 8, 2016
anonymous
So amazing. Such a beautiful and strong family. Thank you for sharing
+3 votes
Jan 8, 2016
anonymous
Nolan and his family are incredible! Nolan is always smiling and happy and his parents have such a terrific approach to dealing with such an emotional rollercoaster. After reading their blog for years, they just love him and want the absolute best for him! They are all truly inspirational!
+3 votes
Jan 8, 2016
lily628 210 points
Your awesome Nolan!  You are a brave little boy. Sending prayers
+3 votes
Jan 8, 2016
7thwheel 210 points
Nolan is a Champ!
+3 votes
Jan 8, 2016
Nolan's Grandma Jen 510 points
Thanks for sharing Nolan's story. He's an amazing kid and we've been so blessed by him.
+3 votes
Jan 8, 2016
Erica Murphy Owens 590 points
As a fellow heart mom with my daughter being Nolan's first "girlfriend" and long time hospital neighbor, I can attest to the strength, humor, stamina, courage, love, grace, determination, compassion Laura and Rob have for Nolan, as well as other heart children.  They have organized toy drives to assist Child Life at Children's Hospital of Pittsburgh of UPMC upgrade the toys/baby equipment available to very young patients in the Cardiac Intensive Care Unit (CICU) as well as the Cardiac Step-down Unit (7A). They are always a great source of information for heart issues, as well as digestive, neurological, genetic, and general medical as Nolan has a mitochondrial condition that was discovered after his heart transplant.  Nolan often is wearing a smile that is contagious, which is evident he inherited from his parents, as they are the same way - upbeat, hopeful, supportive.  We <3 Nolan always.....
+3 votes
Jan 8, 2016
anonymous
Nolan deserves to win for all he's been thru...so sweet and brave...family has so much courage
+2 votes
Jan 8, 2016
anonymous
I have been following Nolan's story for so long and love hearing the updates on him.  Go Nolan.
+2 votes
Jan 8, 2016
anonymous
We love Nolan and our prayers are with him and his family!
+2 votes
Jan 8, 2016
anonymous
I have been following Nolan's story and I just love his big smile.
+2 votes
Jan 8, 2016
bonnies987 190 points
This sweet little boy keeps his precious smile even when he is sick and in the hospital.  He (and his family) have had some major ups and downs but Nolan keeps on smiling.  I love to keep up on his 'adventures'.  Always prayers that this angel lives to a ripe old age with is own family one day.
+2 votes
Jan 8, 2016
anonymous
No matter what Nolan is going through, his gorgeous smile is always there.  A
A smile that will light up the darkest place...and the saddest heart.  God bless you, Nolan!  <3
+2 votes
Jan 8, 2016
Violet1027 190 points
Nolan and his family are inspiring. Nolan is always so happy despite everything he goes through on a daily basis being poked and being stuck in a hospital so often. His family maintains a positive attitude and makes sure Nolan gets to live the fullest life he possibly can. Nolan has overcome so many odds and is so strong! He and his family are in my thoughts and prayers always.
+2 votes
Jan 8, 2016
anonymous
I learned of Nolan's story over 2 years ago through co-workers and have followed him ever since.  This young man is so brave, and always wearing a smile.  He has gone through more at this tender young age than many of us will go through in our entire lives.  Nolan's parents are my hero's and deserve much recognition.  They put him first and do whatever it takes to keep Nolan happy and healthy.  They would go to the ends of the earth for their child and have been kind enough to share his story with strangers.  Nolan touches many lives every single day and he does not even know it.  I pray that Nolan remain strong and healthy and that his mamma keeps posting pics of his heart melting smile.
+2 votes
Jan 8, 2016
Lydia Evans
I've been following Nolan's story for a few years now. He's almost the same age as my son, and he's from Buffalo (although he moved to Pittsburgh to be closer to the Children's Hospital there). I've desperately watched his Facebook feed for an update when he had his stroke and then his heart transplant, and then infections, etc. This little boy has suffered so much, but you'd barely know it from looking at his face. He's a great kid, and he's blessed with tough parents who love him dearly. I'm constantly impressed by his resilience. We Heart Nolan.
+2 votes
Jan 8, 2016
anonymous
Nolan is an amazing fighter.   And always with a smile on his face.   I have been following his story for a couple years now.  His parents are so loving.  They will do whatever is needed for their little guy.   I smile with every step forward and cry when things don't go well.   He's such and inspiration and I pray for his continuing health
+2 votes
Jan 8, 2016
tattgirl58 190 points
Nolan and his family are all so amazing! I met them when they made the move to Pittsburgh to be closer to Children's Hospital. Laura and I made a great connection the first time we met and still remain great friends! We even met up in Disney for dinner this past December for Nolan's birthday! He had such an amazing time and we did too! He's the sweetest little boy and I pray for their whole family everyday!
+2 votes
Jan 8, 2016
robkim123 190 points
I stumbled across Nolan's story and have followed it ever since. I've shed tears and laughed out loud and been proud and fearful and always hopeful.  I've even felt anger that one child and family have had to endure so so much. He could not have a more amazing family. They've literally given their lives to getting the very best care they can for Nolan. Their strength inspires me.  Just love this little boy whose smiles warms my heart!
+2 votes
Jan 8, 2016
SarahN81 190 points
I've cheered for Nolan's and followed him since the very beginning as he is very close in age to my boys. We truly <3 Nolan! He, his story and his parents are truly inspirational!
+2 votes
Jan 8, 2016
Dridgway 190 points
I've been following Nolan since he received his heart transplant.  He's such a fighter with a huge personality.  His smile is contagious!  What a cutie.
+2 votes
Jan 8, 2016
Givechandlerachance 280 points
Love Nolan + family!!!
+2 votes
Jan 8, 2016
anonymous
We love Nolan. ❤️ Never ever give up, sweet little heart warrior. ❤️tersonB
+2 votes
Jan 8, 2016
Judy Hallahan
I've been following this little trooper's story since his heart transplant.  He so courageous and always smiling.  His parents are pretty amazing too!
+2 votes
Jan 8, 2016
anonymous
I have followed Nolan on Facebook for quite a while now and in spite of his incredulous medical issues, this little boy is the happiest boy with the greatest small ever.  I am a stranger to them but I feel I know this family and his mother especially does everything possible to keep him as healthy as possible but at the same time as normal as possible.  She is a lovely hero and this little man gives so much joy when we follow his journey!  He is a winner and my vote is for NOLAN!
+2 votes
Jan 8, 2016
TreenVonne 190 points
A friend of mine happen to send me a post Nolan shortly after his journey began. I became so touched by it, my heart opened up and I found my self making basket for a local fund raiser they had for him. I did my best to make them home made, and I am far from a Martha Stuart, but I did it. My heart was telling me there is a reason for things. After reading about Nolan, I still continue to follow his story, but his story also helped me see, there are so many more out there like him, so I try to open my heart as much as I can now. When I see his smile, it fills my heart with joy! I realize I have been very blessed, so I take my blessing and try to open my heart to others who may not have been blessed in the same way!
+2 votes
Jan 8, 2016
vehowell 190 points
This precious boy was in the same Babycenter group as my first son. I've seen him on his ups and downs, and he is extremely precious. The family has been through so much and they are always so positive. I heart Nolan!
+2 votes
Jan 8, 2016
anonymous
Beautiful boy!
+1 vote
Jan 8, 2016
anonymous
I have followed Nolan from very early on like so many others. What this child and his family have been through, there are no words short of heartbreaking and amazing.  They are thriving right now and it's incredible to see the strength they have.  Love and prayers to the real life incredibles!
+1 vote
Jan 8, 2016
anonymous
Such a brave fighter. Big hugs buddy
+1 vote
Jan 8, 2016
Elise Wooten
I've been following Nolan since the very beginning. He has been an inspiration to many, including myself. I love his perservance and his love of life. He has such a beautiful soul and gentle spirit. His laugh and giggle light up a room. He is what we should all aspire to be, ALIVE. He teaches us all to enjoy the little things in life, like watching the traffic pass by your window or a walk down the hall or ride at Kennywood (amusement park). For a child who has been through so much, he never stops smiling, never stops laughing or giggling and always sees the beauty in life. He is a treat heart warrior, both physically and spiritually. Thank you for sharing your life with us Nolan :).
+1 vote
Jan 9, 2016
anonymous
What an inspiration! The bravery, courage and strength in this family! Way to go Nolan! Your smile is light! Sending love your way!
+1 vote
Jan 9, 2016
Animallover83 160 points
I have been following this family since just before his transplant. I've read all of the ups and downs of his journey and have prayed for all. I feel like they are a part of my family. He is just an amazing little boy with a beautiful smile
+1 vote
Jan 9, 2016
Pamela Nouvertne-Wal 150 points
Love this little boy, he has been through so much, I follow him on facebook, love the days when we get to see him smiling and happy, he is always in my prayers and his family is truly amazing, he has come so far and fights and fights to just be alittle boy, love his amazing energy !! I read his journey daily.  Love you Nolan !! Keep up that incredible smile we see !!
0 votes
Jan 10, 2016
anonymous
Love this little man.  Him and his family are so strong.  We love you Nolan!!
0 votes
Feb 4, 2016