Hi friends!! My name is Connor John Corkern. I was born in November of 2006 to a loving family in south Louisiana. After I was born my parents noticed that I wasn't feeding well and I was turning blue. I was sent to the NICU, put on a ventilator, and diagnosed with Persistent Pulmonary Hypertension. I was off the vent after a week and started getting better after two blood transfusions. I made my way to the intermediate nursery learning how to suck on a bottle and keep my temperature up. After 3 long weeks I got to go home for Christmas! I began getting severely jaundiced and was sent by my pediatrician to Children's Hospital in New Orleans. Once there it took over a week for the doctors to find my mystery diagnosis. A brain MRI revealed some interesting news....I had bilateral open lipped schizencephaly (rare brain malformation causing clefts or slits along the sides of his brain and I am missing some sections of my brain), congenital panhypopituitarism (I only have 1/4 of my pituitary gland meaning I am completely hormone deficient and on many medicines to replace them), diabetes insipidus (I don't produce the anti-diuretic hormone and my kidneys flush out any water in my system in which makes me dehydrated-so I take a medicine called DDAVP to keep water in), adrenal insufficiency (my adrenal glands do not kick in when I am sick, hurt, or having procedures-this can be a life threatening condition if not given proper emergency medication or daily meds), agenisis of the corpus callosum (the corpus callosum is some fibers in the middle section of your brain that helps transfer information from one hemisphere to the other), optic nerve hypoplasia (optic nerves in my eyes didn't develop and are extremely small causing me to be blind-although I have light perception), intractable epilepsy (seizures SUCKKKKKK), I am nonverbal, I cannot walk, and I am severely developmentally delayed YET I think I inspire all who I meet! I always have a joyful spirit and have a vibrant, infectious, toothless smile! I am truly a blessing and gift from the Lord. Although I walk a long, hard road carrying our Savior's cross, I do so GLADLY. I am hospitalized numerous times for seizures, adrenal crisis, pneumonia, stomach bugs, surgeries, you name it. My health is greatly compromised by the slightest sickness.
My momma is Katie, she teaches special education (God has a funny sense of humor, huh?) at our local public school, in which I attend. My daddy, Coye is a Louisiana State Trooper. I have two AMAZING brothers: big bubba Aaron and my little brother Cooper. They know how lucky they are to be blessed with me as their sibling and they never take a day for granted.
As I endure my many adventures we ALWAYS welcome prayers, prayers, prayers-or warm thoughts-or hugs-or any postive vibes you can send our way!. God is truly showing us the path to take and we will follow and obey HIM!

Updates here:
https://www.facebook.com/TheAdventuresOfConnorMan
Donations
http://www.caringbridge.org/visit/connorcorkern