+21 votes
Melody's Quest To Meet Ed Sheeran
Description
Meet Melody,

She is 7 years old and has Rett Syndrome. (Plus a lot more underlining issues) She has been in Hospital since 26th October 2013 (10 months now.) Melody originally went into Great Ormond Street Children's Hospital for a 5 day admission for an Operation, but this uncovered more problems than anticipated and now Melody requires a continuous Morphine and Ketamine pump attached to her 24 hours a day (due to bursts of Chronic pain) running alongside her TPN (Total Parenteral Nutrition, which supplies nutrients to her body intravenously).

She also suffers from Intestinal Failure, internal bleeding, Enteric Neuropathy, Autonomic Dysfunction, and an inflammatory process which have also contributed to Melody being in Hospital.

Due to Melody being connected to Morphine and Ketamine, we are being told that Melody cannot come home (due to licensing and care support) by the Croydon Commissioners committee.

Melody has been ready for discharge since February but due to the Croydon Commissioners Committee they are keeping Melody in hospital against her Human Rights.
All we want to do is bring Melody home, she is classed as Life limited and no one can say how much time she has left. It is imperative that Melody gets home as soon as possible to be with her family and get the quality of life and normality that she deserves. Both her Parents are fully trained in TPN, IVs, Oxygen, Resus and currently awaiting their NCA training. 13 different home nurse support packages have also fallen through and there is no other option.

There are multiple mistakes being made on a daily basis in her care which put Melody at risk (and could potentially be life threatening) at hospital by nurses. mistakes which would not happen when her parents are providing the support at home as she will be getting 1:1 care from both parents as they both know her care plan, needs and medical support off by heart.

It is time to let Melody home with her family providing her care, where she will be happy, safe and be able to live the life that every little girl deserves.
Contact Facebook:
https://www.facebook.com/Melodyinmind
719 views Oct 16, 2015
anonymous
Welcome to ellenNation,
The Nation of Ellen DeGeneres, where you can showcase your submissions, add videos, images and receive opinions from other ellen fans & the members of the community. - ellenNation

Please log in or register to Comment this Media.

tracie 170 points
I am extremely proud to know Melody, she has continually surprised medical staff by beating the odds. This young lady has suffered more pain than any child should ever.  #keep fighting Melody
+1 vote
Oct 17, 2015
anonymous
Please watch, share, like and comment. Let's get this video to Mr Ed Sheeran. xx
0 votes
Oct 17, 2015
melicamay 150 points
Ed Sheeran needs to meet his princess!! Melody is a true angel, she is a blessing to know, and to be gifted her affection is an amazing gift.....he is a lucky man!!!
0 votes
Oct 17, 2015
Sarah Louisa Gordon 140 points
This little girl is amazing please please help make her dreams come true x
0 votes
Oct 17, 2015
Lynsey Davies 150 points
Please help melody she is amazing and so strong..help get this video to Ed sheeran xx
0 votes
Oct 17, 2015
anonymous
I would love to see Melody have her wish come true!
0 votes
Oct 17, 2015
Mike Twohigg 140 points
Ed Sheeran should move heaven and earth to meet Melody, she is a star , he should be pleased to have the opportunity to meet this princess who is such an inspiration to so many.
0 votes
Oct 17, 2015
Tracey Harris
I don't know Melody personally but have been following her story through facebook. Please please help this beautiful young lady's dream come true, she has been through so much and is still suffering but still manages to smile that beautiful smile.
MellyLou 160 points
Please help make Melody's dream come true, let's help her meet Ed Sheeran.
0 votes
Oct 17, 2015