Malcolm entered the world not breathing due to cord compression. He was diagnosed soon after with hypoxic ischemic encephalopathy (HIE) and recently diagnosed with hypotonic cerebral palsy. He works hard everyday to do things that are easy to take for granted. He goes to intensive physical therapy and does neurofeedback treatment now, but has also been in regular physical, occupational, and speech therapy. He is 15 months old and is a happy little boy, but we are working on helping him rewire around damaged areas of his brain. He has a 10 year old sister, Amelie, that adores and loves him exactly the way he is. She has been through a lot too and displays extraordinary strength. She was at my side during Malcolm's birth! I hope someday that there can be more information available about HIE. It's preventable in many cases and someday may not even exist. The only treatment, the "cool cap," has only been available very recently and under strict criteria. Many hospitals are not even equipped with it and babies have to be flown to different ones: vital time wasted! Feel free to visit the blog I started inspired by him at www.cloudintheocean.com. Thanks!
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