Cian McDonnell Lynch is from Carlanstown in Co Meath. He suffers from a very severe form of Dyskeratosis Congenita which affects one in a million. Cian is very badly affected by this condition. He went completely blind in March 2011 at the age of one after an operation to try to save his sight was not successful. Shortly after this he got very sick and doctors soon discovered that his bone marrow was failing. It took a long time to get a diagnosis for Cian as his condition is so rare. He was constantly in and out of hospital getting platelet and blood transfusions for a year until his blood count hit rock bottom. In March 2013 Cian had a bone marrow transplant. This was successful. In January this year Cian went to hospital as he was low in energy and low oxygen saturation counts. He spent five weeks in hospital until he was diagnosed with microscopic pulmonary avms. Doctors are not sure if this new problem is caused as a side effect of his bone marrow transplant or his underlying condition. This is very serious for Cian. His doctors recently gave us the devastating news that Cian has only months to live. We are not giving up. His files have been sent to Great Ormond Street for review. If they do not agree to do a lung transplant we are hoping to take Cian to Boston as they are not ruling him out completely for a lung transplant. We have amazing friends and family who want to help us by doing fundraising for Cian which will go also go towards expenses. We don't have a cost of what it would be to go to America but substantial funds need to be there to be able to go. As soon as there is anymore information, it will be posted to Cians page.
Website and donations:
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