WES' CANCER BATTLE - HIS 4TH BATTLE WITH NEUROBLASTOMA
As of 8/28/2015:
Wes Pak is 9 years old, a big brother to Ebin (4) and Eli (2), has a love for the environment, and a dream of becoming a scientist/marine biologist. Wes also has been battling cancer for the last four years (more than 1,500 days!). He was diagnosed with stage 4 neuroblastoma, a very aggressive form of pediatric cancer on June 24, 2011, and since then, has been fighting to survive on a daily basis. On June 5th of this year Wes and his family were told that his cancer had returned for the 4th time leaving him with a very grim prognosis. Local doctors gave little to no hope, so Wes is continuing treatment in NYC, hoping to defy the odds stacked against him. Wes’ last scans revealed progression despite chemotherapy. Cancer has caused this family to lose a lot over the years including their home, Wes’ childhood, their peace of mind, and as of August 31st, his mom’s employment, leaving them with debt they continue to drown in knowing one day bankruptcy will be inevitable. However, it cannot take away their determination to save their little boy.
To date (August 2015) Wes has had the following:
17 rounds of chemotherapy cocktails (each being 3-5 days long while inpatient) Soon to be more
14 rounds of external beam radiation
2 rounds of intraoperative radiation
5 major abdominal surgeries
3 port/line placement surgeries
one stem cell apheresis
6 months of Accutane
8 rounds of mouse 3f8 antibody treatment (clinical trial)
8 cycles of humanized 3f8 antibody treatment (clinical trial)
3 vaccine trial injections
4 Clinical Trials (Wes is now dependent on these trials)
15+ four-point bone marrow biopsies
numerous scans and injections
more blood transfusions than I care to count.
Wes has lost his left adrenal gland, left kidney, part of his pancreas, a piece of his liver, a small portion of his small bowel, and had his colon taken apart twice and put back together. He also has myositis caused by radiation leaving one leg slightly shorter than the other, chronic GI issues from frequent surgeries, as well as neuropathy from the chemotherapy.
If you wish to follow Wes’ journey you can do so here: www.facebook.com/Wes.fight.against.nb
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