+127 votes
Miracles for Mabry Kate
Description
Mabry Kate was born a happy and healthy 8 lb. baby on March 13, 2014. Everything was seemingly fine for almost 3 months. She was smiling, cooing, reaching, grasping, and accomplishing many other developmental milestones as most babies do. On June 3rd, she was admitted to a hospital for a simple urinary tract infection, and from that point on her development went progressively downhill. We searched for answers for about three months in Knoxville going to all sorts of specialists from neurologist and geneticists to endocrinologists and cardiologists. We finally sought answers elsewhere in Cincinnati, Ohio at their children's hospital where we met with a team of doctors. We thought that was best for her because she was having such a variety of symptoms. After one visit, Cincinnati was able to give us the answers we have desperately been searching and waiting for, but they were and still are devastating answers we could have never dreamt of. Our precious angel has krabbe disease. It's a very rare genetic disease that usually takes the life of a child anywhere from 6 months to 2 years of age. This disease and other leukodystrophies are not included on the newborn screening in Tennessee. Had they been and this been caught early, her life could have been saved, as stem cell transplants can reverse the disease. Babies born with this show normal development for the first few months, and for some the first few years, followed by progressive loss of development. Once the loss of development begins, it cannot be reversed. Though our baby girl started losing these milestones at around 3 months of age, we feel so blessed and fortunate to have seen her beautiful smile complete with the most precious dimples, and feel the utmost happiness in our hearts at the sight of it; however, our soul aches at the thought of not ever seeing it again during this life. Fortunately, as followers of Jesus, we have this thing called hope. We have hope for when Jesus calls her home, that we too will be called home one day, and we will meet again and she will be smiling at us as we run to scoop her up into our arms. We have hope that this life is far shorter than the eternity we get to spend with her in Heaven. And we have hope that she is going to be in a much better place than we could ever fathom giving her here on earth. She is truly a God given gift. She has taught us more than anyone else could have tried to teach us in any area of life. We hope that she can give you hope through Jesus Christ for your eternal future. We thank you for your continued prayers. This is by far the hardest situation we have and will ever go through. Our hearts burst open with love for her, so much love that can't be described. Please continue to pray. We are going to love on her as much as we possibly can. We do know that our God is a God of miracles, there is still hope for that. But no matter the outcome, she is our miracle, for she has our hearts and has already strengthened our faith. She is our heart.


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4,327 views Jul 22, 2015
anonymous
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Annonymous, TN
Mabry Kate had a Purpose for her short life and that was to CHANGE the laws of testing for Krabbe Disease in newborns.  She is a FOREVER Angel here on Earth.
+5 votes
Jul 23, 2015
anonymous
She is so cute <3 <3
+3 votes
Jul 22, 2015
Alanna
What an inspirational little girl and family! They deserve the best.
+3 votes
Jul 23, 2015
anonymous
Lets vote for Mabry Kate!!
+2 votes
Jul 22, 2015
anonymous
Love this girl and miss her every day!
+2 votes
Jul 23, 2015
mrsmcgovern629 200 points
Such an amazing family. They are the strongest people I know and so very encouraging!
+2 votes
Jul 23, 2015
KJETT 180 points
MK's time here on earth may have been short, but it had a huge purpose! Through her fight and the dedication of her amazing parents, newborns in the State of TN will be screened for several genetic diseases including KRABBE! Because of her fight, her baby brother was diagnosed and is receiving appropriate treatment to overcome this terrible disease.  MK was an inspiration to an entire community and state.  #TeamMKO
+2 votes
Jul 24, 2015
anonymous
How to contact? any email please
+1 vote
Jul 22, 2015
terrys4 170 points
Amazing family with amazing hearts. Very inspirational!
+1 vote
Jul 24, 2015
Thompsonjm 170 points
This family is amazing! Everyone please VOTE!!!
+1 vote
Jul 25, 2015
Nikki Parham-Martine 300 points
Precious little angel!!! <3
+1 vote
Jul 26, 2015
anonymous
Prayers for her family
+1 vote
Aug 5, 2015
anonymous
Bless your sweet family!
+1 vote
Aug 5, 2015