+6 votes
Amy raising awareness of Batten Disease - CLN8 Turkish variant LINCL
Description
Amy was undiagnosed for years, then the CLN8 genetic mutations were found. 1 is a known disease causing mutation, the other two aren't known. 4 years Amy has been bullied online by a grown woman we don't know. We want to raise awareness for Batten disease and for bullying.

email
quietas1@gmail.com; quietas@tampabay.rr.com
Website
http://christy-thehappiestplaceonearth.blogspot.com/

Facebook: https://www.facebook.com/pages/Amys-Hope/150682808366096
480 views Jun 23, 2015
anonymous
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quietas 180 points
Baby girl
+1 vote
Jun 23, 2015
girlchristian 270 points
Raising awareness of this horrible disease
+1 vote
Jun 23, 2015
Naddie E. Martinez 10,570 points
Need to find a cure for this terrible monster that rob these beautiful children of there lives
+1 vote
Jun 23, 2015
Chris
Hugs and prayers Amy.
+1 vote
Jun 23, 2015
JoAnn Caudle 18,040 points
We are still trying to spread awareness and push for the cure! How many kids and families have to suffer?
+1 vote
Jun 24, 2015