+43 votes
#ellendancewithraven
Description
My name is Raven Walton. I am trying to be a voice for gastroparesis a monster of disease. Women,men and children are suffering everyday with this horrible disease with no cure only treatments. Many of us starve to death wither away on feeding tubes. I am trying to get on The Ellen Show to dance with Ellen to bring awareness for gastroparesis. I put together this YouTube video of me dancing for Ellen! Because I know she loves So You Think You Can Dance I dance with a stomach pacemaker that is visible. I also do beauty pageants and show off my pacer and scars with pride. One day I hope to be the first model to walk down a runway with a gastric pacemaker. I am trying to show people scars are beautiful.
https://www.youtube.com/watch?v=IQOljLTT_6I

Also NFL player D.J Williams made me his MVP of the week https://www.facebook.com/video.php?v=446710035479372

I am trying to get as many people as I can to tweet Ellen #ellendancewithraven help me get to her so I can shed light on this horrible disease.
6,025 views Mar 23, 2015
anonymous
Welcome to ellenNation,
The Nation of Ellen DeGeneres, where you can showcase your submissions, add videos, images and receive opinions from other ellen fans & the members of the community. - ellenNation

Please log in or register to Comment this Media.

Vesper7272 1,090 points
Oh please for years we have had no hope. Raven has given so many of us hope that our voices will be heard. My Goodness the tears that will flow around the Gastroparesis community ...if she makes the show...please ellen we love and need you:)
+12 votes
Mar 26, 2015
Toria 6,590 points
Do you know anyone with an 'invisible' illness? 5 million people with GASTROPARESIS (gp) out of the billions on the planet may not seem like much, but it is to us. It is our world of reality. Many are on feeding tubes w/i weeks of diagnosis. Many are just sick & cannot go too far from the restroom for one end or the other. We're throwing up or we're throwing down. There is no natural progression to this illness. Even most doctors do not know the scope of symptoms that are related to it, which causes us patients undue grief.
#ellendancewithraven
+11 votes
Mar 26, 2015
anonymous
I also live with this disease. I do not tolerate solid food and survive only on Glucerna shakes for my nutrition and G2 for hydration. It is a terruble way to live.
+11 votes
Mar 27, 2015
Deb 1,610 points
I am also living with this disease and want to see it finally have a voice! Please let this finally be that moment when we are all Raven! And she dances with Ellen for a voice to our unseen community!  #ellendancewithRaven #beon11 #curegp #spoonis www.curegp.com www.iamokaynow.com
Sincerely,
Deb Shrader-Trotter
+10 votes
Mar 23, 2015
+10 votes
Mar 23, 2015
Melissa Newlon 420 points
Please help us raise awareness for Gastroparessis! We are reaching out to you because we know it would help us raise awareness tremendously! There are millions of people affected by this horrible disease but yet hardly anybody knows anything about gastroparesis or that it even exist. It's a disabling disease that needs a cure! People are dying from starvation and trying to manage the symptoms the best they can. No one should have to live like this. I have GP and it has changed my life unfortunately. It has forced me to quit working and makes having a social life next to impossible. I feel like a prisoner in my own body. So please dance with Raven to raise awareness for Gastroparessis!
+10 votes
Mar 27, 2015
Grneydgirl31 390 points
Hi I also suffer from this disease as well. I went two years without a diagnosis. Which now I do not tolerate solids and I am on a feeding tube. Tomorrow morning I go back in for a tube change which I will be awake for instead of being asleep for this. Please Ellen dance with Raven for all of us that suffer from this please help raise awareness .
+9 votes
Mar 27, 2015
Jean 330 points
#ellendancewithraven
#curegp
GASTROPARESIS AWARENESS
+9 votes
Mar 27, 2015
Gillian S.
Please help us raise awareness for gastroparesis. Because of gastroparesis (GP), I must rely on feeding tubes and IV's to live. I cannot eat or drink. I spend the majority of my life in the hospital, even though I am only in my 20's. Please help us and give us hope...#EllenDanceWithRaven
+8 votes
Mar 27, 2015
gpbutterfly 310 points
We need a voice, and I'm so thankful for Raven! We have hope because of her. I'm.so tired of living the way I do.  The pain,nausea, muscle weakness,extreme fatigue, and medical tests. I'm fed up with missing out on life as far as working like I used to and spending quality time with my family and friends. Ensure and applesauce is not enough to keep me alive.. I'm also tired of seeing members of our gp family die ... There is NO CURE! We need awareness of this magnitude so I beg you Ellen to please help us!!
+8 votes
Mar 28, 2015
Amber
I also live with Gastroparesis. We need awareness on this horrible disease. Ellen, please dance with Raven. By you dancing with her, you are dancing with all the Gastroparesis patients around the world. <3 Thank you! - Amber Roark #ellendancewithraven #curegp #gastroparesis
+7 votes
Mar 27, 2015
+7 votes
Mar 27, 2015
Tami Lackie
I know Raven & her Mom, Stacy, & have seen what this horrible disease can/has done to this amazing family. This is one amazing young lady who still keeps a smile on her face & puts others first, as do the rest of her family. Please hear her plea & help her bring national attention to a disease the majority of us would never know about without knowing someone 'dying' from it.
+7 votes
Mar 28, 2015
anonymous
Get her on your show. So worthy.
+6 votes
Mar 28, 2015
Norma Ambrose
I have GP possibly as a result from systematic lupus. However I'm not a candidate for the pacemaker or any feeding tubes due to the lupus, previous blood clots & infection caused by lupus. I've been waiting almost 8 months for a surgery to bypass my stomach. I can't work, I'm on several medications to try to ease the symptoms all while raising four children as a single parent unable to hold a job. Many doctors have sent me away due to complications and risk of the surgery. I'm now waiting to meet with a new doctor and hope he too like the other few won't refuse to help save my life. Please Ellen dance with Raven for us all. There is no cure but awareness & more study could be done to help relieve the symptoms. As a result of constantly being sick I have Barrett's esophagus and that too is painful. I want help & for others to realize the person in the stall at the restaurant isn't purposely getting sick but can't help it. I now eat what little I can in the privacy of my bedroom so nobody knows I'm getting sick. I'm literally starving to death but two bites of food makes me horribly sick. I do mostly liquid diets but they too don't stay down. It's beginning to control & destroy my life and the shame and embarrassment is too much to bare anymore. I'm a prisoner to my own body and my home. It's taken it's toll on my children & me & I just pray for help and awareness & thank Raven that she is being the voice for us all because we are real people unable to live a normal life like others. Ellen you could help millions to at least be more understanding and less judgemental.
#ellendancewithraven
#raisegpawareness
+6 votes
Mar 28, 2015
anonymous
Dear Ellen I am 29 years old and a Type one Diabetic. I have been a diabetic for 23 years of my life. I have been living with Gastroparesis for 8 years. Everyday is a different battle and a struggle. Eating food and then five minutes latter getting sick has made me scared to eat. When i go to the hospital its pokes pokes all the time. The bags a fluids they put in me makes me wish i could eat, and the nurses start to know you by name. There is not many people who know about Gastroparesis and there are five million and over like us who have this. Every person who has this deals with different symptoms at different parts of the day everyday one day may be good one day may be really bad. Trying to drink out of a little kids sippy cup just to keep something down, but at the same time being embaresed because your an adult. When people ask why and you explain they don't understand. Family ,friends and loved  ones have to watch us suffer with Gastoparesis worry and are stressed because they simply wish that there was something they could do. This has been a journey in life  and I am asking you Ellen please dance with Raven Help Bring Awareness for Gastoparesis There are Millions of us out there. Gp Power For Life! Thank You Lindsey Robbins Woller
+6 votes
Mar 31, 2015
tiffanie_joy 400 points
I was diagnosed with gastroparesis over 5 years ago and it has completely changed my life. I rely on a feeding tube and well as a stomach pacer, and often need to rely on IV hydration and infusions to avoid severe dehydration and electrolyte and vitamin deficiencies. We need awareness! Raven has given so many of us hope! #ellendancewithraven #curegp
+5 votes
Mar 29, 2015
anonymous
I also have GP and have both a J tube for feeding and a separate G tube for venting. I have had this since 2012 (diagnosed). And has tubes for a little over a year #ellendancewithraven
+4 votes
Mar 31, 2015
anonymous
This illness took 20years to get a diagnosis. NOBODYshould have to go through that kind of hell, only to be told that there is nothing that can help them. We need help & we need it NOW. #ellendancewithraven NEEDS to happen. People have no idea how hard it is to have food in your face all the time & not be able to eat I. Think about it, everything we do is based around food. We celebrate life, love & death with food. Its a horrible feeling to loose control of your bowels in public.   PLEASE HELP
+4 votes
Mar 31, 2015
Toria 6,590 points
The woman on the video is Raven's mom, Stacy. She also has gastroparesis (gp), as well as her young son. We gp sufferers stand behind Raven, trying to get her on Ellen's show to help bring awareness to this terrible illness. Please help by commenting and voting. We need national attention to help get the ball rolling on more research and possible cures for gp.
#gpawareness #gastroparesis #curegp #ellendancewithraven
+4 votes
Mar 31, 2015
Vesper7272 1,090 points
The Gastroparesis nation is waiting to hear any news about you dancinh or letting raven dance for you. She is a very drivej young woman. She tried out for Sytycd and did well through auditons last year. She is trying to use every angle to bring awareness through something she loves and is good at dancing. Please #ellendancewithraven....make our hearts sing with hope!!
+3 votes
Mar 31, 2015
Jane Marie 220 points
Please, Ellen, Dance with Raven!  My daughter has been suffering with this disease for 3 1/2 years, has been hospitalized 29 times, has had countless tests and procedures, and more IVs than we can count. She recently had the gastric neurostimulator placed. She is 17 years old and wants to be able to do the things her friends get to do. We need some publicity so GP will be more recognized in the medical world.  There are so many people suffering with this awful disease!  DANCE WITH RAVEN!!
+3 votes
Apr 1, 2015
anonymous
I also have Gastroparesis and am completely dependent on a feeding tube for my drinking, eating and medications. Please please help us raise awareness and maybe find a cure :) We are fighters and aren't going to let this disease make us stop enjoying life. #ellendancewithraven Yay for Ellen!
+3 votes
Apr 1, 2015
Amy Lehr
Please, please help us raise awareness for this dreadful disease. I'm literally starving to death. Every day is a chance in wether I eat and It stays down or if I spend a majority of my day in the bathroom. I'm getting my second feeding tube this week. It's my only hope at living a Simi normal life if there ever was one with a tube sticking out of your intestines. Please help us. I would love to see my nieces and nephews grow up.
+3 votes
Apr 1, 2015
Slyfoxmarie 540 points
Ellen, please dance with Raven Walton to raise awareness for all of us who suffer with GP!!! Most doctors say "huh" or "gastro-what?" Please help Ellen :)
+3 votes
Apr 1, 2015
Toria 6,590 points
I have gastroparesis, (gp), but my illness has not yet progressed to a feeding tube. I am one of the lucky ones, yet I have had to give up looking for a job, after I was laid off from the job I had. It's no fun to know when you're going to be sick at a moment's notice and have to run to the bathroom. This is not something you can hide, yet if you are not constantly sick, co-workers and bosses think either you have the flu, and they want to stay away from you, or that you ate something that didn't agree with you. Sometimes, it IS the food that didn't agree with you, because your body says, "Food, I don't THINK so!", or it runs through your body very fast without providing nutrients to it. Either way, co-workers & bosses don't like it. Then there are the impromptu ER visits because we're dehydrated or our body is retching very profusely and we cannot control it, so we need a shot to help stop. Please help get Raven on Ellen's show to help bring national attention to this very worthy cause.
#EllenDanceWithRaven #curegp #gpawareness #gastroparesis
+2 votes
Mar 29, 2015
Slyfoxmarie 540 points
Ellen, please dance with Raven!!!! There are so many people who suffer constantly in silence, most doctors don't even know what gastroparesis is... Or even worse, "oh, your stomach is just slow" like that's all it is!!! Gastroparesis caused acute appendicitis and I almost died last year. PLEASE HELP US RAISE AWARENESS!!!!!!! #ellendancewithraven #curegp #gpawareness
+2 votes
Apr 6, 2015
Vicki Sayenko-Morale 230 points
Hey guys! Let's raise awareness and help find a CURE!!!
https://www.facebook.com/events/1624514884428882/
+1 vote
Apr 3, 2015
Sebastian's mommy 105,120 points
#curegp. Please help Raven met #ellen and #dance with her. It would make someone's life. A little goes a long way ! #godbless. #gpawareness
0 votes
Apr 20, 2015